I think that just by saying mental health is so stigmatized they're in fact stigmatizing mental health.
I don't have Visa or Maestro, the Dutch system works differently. We get a card from our bank and we pay for stuff with that or with our phones...
Donating to your project is probably one of the most cost-effective things patients of any description could do. Chipping away at the religious...
Happy about this actually. I do feel they might be on to something and their researchers will at least do their due diligence.
Yeah, I think there is a strong possibility that for at least a subset of patients there's something like that going on. I've had EBV as regular...
There's really a chance that it's just a big donation from someone that will triple every donation made in November or something like that. I'm a...
ME CVS Nederland I doubt is gonna sign either way. They sometimes pay lip-service to biomedical stuff but it's a BPS-outfit as far as I know....
Gotta admit that as a man it's a very difficult issue for me to grasp. There was a Dutch comedian(Peter Pannekoek) that made a prison-analogy in...
I hope your ME Associations will get a say in all this. It's easy for bad researchers to distort this process if given an opportunity.
I've been watching the Polybio and Swedish symposium's for a bit and it does not only seem to have given us a boost but also diseases like SLE,...
Could do nothing comes from, ik kan er niks mee. Meaning he simply doesn't have a method for treating. The bit about calling us nutters and...
Might have finally reached a stage where they fucked to many of us over. I think that's also where Knoop went wrong. He went after LC-patients...
Hope something good comes of it, the terminology CFS/ME usually doesn't bode well.
Watching it was actually pretty doable after splitting it into 10/15 minutes bursts. The most interesting talk for me was that of Putrino. He...
Perfection being the enemy of good is what they call that in NL and I think in English too. I think the WASGF3 finding illustrates that point to a...
It's so weird to now read decent to good articles about ME for what feels every week now. And the quality seems to keep increasing as word gets out.
I hope the way that the biomedical LC-researchers have positioned themselves now ensures that we won't have a repeat of the ME Lines-scandal...
More than a bit imo. Patients should in any case be treated with respect, but also if you find a patient difficult to deal with because there...
Interesting to see that the only university in NL that's put money in is the one that hosts the dreadful NKCV(Knowledge center chronic fatigue)...
I've been thinking about who we're talking too in a lot of instances. In NL we have the Rosmalen/ZonMw debacle, but nobody is talking about how...
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