So you're not necessarily talking about severity, but rather the repeated lack of return to baseline after PEM?
This
MEA comment on it in their dx booklet (page 13) Diagnosis-of-ME-CFS-The-importance-of-an-early-and-accurate-diagnosis-APRIL-2022.pdf
The Newcastle NHS Chronic Fatigue Syndrome Service: not all fatigue is the same - PubMed Alternative diagnoses to chronic fatigue syndrome in...
thanks @jnmaciuch That looks interesting...
Hi @jnmaciuch I'm interested to read your experience/ideas, but I'm afraid reading very long paragraphs of text without is impossible for me (&...
I always lie with passenger seat pushed fully back, and fully reclined, then i have several cushions in the foot well to put my feet & lower legs...
Awww thats so nice, I just assumed you meant Dr S thank you for the encouragement, it makes my day to know i been of some help, some use to...
Sorry i not been able to read the whole thread so apols if this redundant, but i use silk duvet. I have huge issues with night sweats & also cant...
I somehow managed to miss this thread till now @Aldebaran's Star, sorry about that. I'm so glad that we have helped and that Dr Speight has been...
yes this, except intensely urgently irritated rather than panic. I suppose it's a little like panic but has no fear element just the intense...
This 100% especially bolded bit yeah lol me too. What’s striking is that if Im for example, in a car reclined a bit & really struggling after a...
yes thats what i was meaning. I'm not doing well at explaining myself atm.
Yes a good idea. One thing we could do to move things forward, even if only a little, would be to utilise the factsheet project. When reading...
haha I clicked on the thread to find out what a 'decadent' brain was... I had a cartoon of a brain on a chaise longue sipping champagne & eating...
Sorry only able to skim sorry if i missed thie answer. but is there a reason (other than aesthetics) that you wouldnt want to bring one of the...
sorry John, i didnt expain well... by 'the content' I meant whether the news is good or bad for claimants. Obviously it will be bad, I just...
delighted to see him posting on the subject, or delighted to hear the content of his video? Guessing it's the former?
yes. I must say i am grateful for your posts Yann, I often think 'yes thats exactly like me' & it helps so much, especially with the stranger...
Nora Batty anyone? TBH the whole BPS thing is Compo level daft, if only it were as amusing. Ignore this post if you dont know what it means...
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