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  1. JemPD
    Post

    Petition: Save Karen Gordon from Dying of Malnutrition and Dehydration due to NHS Failings

    Dont lets base that on what I've said - perhaps I am alone in that. From the travel (ambulance or otherwise) point of view, it actually takes a...
    Post by: JemPD, Oct 23, 2024 in forum: Petitions
  2. JemPD
    Post

    Petition: Save Karen Gordon from Dying of Malnutrition and Dehydration due to NHS Failings

    I've woken this morning feeling dreadful about what i said. Who the hell am I to comment about any of it really - I'm not in that situationand the...
    Post by: JemPD, Oct 23, 2024 in forum: Petitions
  3. JemPD
    Post

    Petition: Save Karen Gordon from Dying of Malnutrition and Dehydration due to NHS Failings

    We want Karen to live, and, should anyone from her friends/family/loved ones are reading this, we passionately want Karen to live.... to get the...
    Post by: JemPD, Oct 22, 2024 in forum: Petitions
  4. JemPD
    Post

    Petition: Save Karen Gordon from Dying of Malnutrition and Dehydration due to NHS Failings

    exactly this
    Post by: JemPD, Oct 22, 2024 in forum: Petitions
  5. JemPD
    Post

    Petition: Save Karen Gordon from Dying of Malnutrition and Dehydration due to NHS Failings

    I know we have no proof. But it comes back to people not really recognising that travel is exertion, the same way that sensory stimulation, or...
    Post by: JemPD, Oct 22, 2024 in forum: Petitions
  6. JemPD
    Post

    Petition: Save Karen Gordon from Dying of Malnutrition and Dehydration due to NHS Failings

    Yes I do see what you're saying... I think? Would I be right in thinking that while you may well believe PwME that it will make them worse, we...
    Post by: JemPD, Oct 22, 2024 in forum: Petitions
  7. JemPD
    Post

    Petition: Save Karen Gordon from Dying of Malnutrition and Dehydration due to NHS Failings

    The problem is that being transported will definitely produce PEM, the evidence for that, the only evidence we have, is umpteen people with severe...
    Post by: JemPD, Oct 22, 2024 in forum: Petitions
  8. JemPD
    Post

    George Monbiot on ME/CFS, PACE, BPS and Long Covid

    completely agree, I think an inquiry before we either get rid of the old guard, or we have absolutely rock solid evidence of biological...
    Post by: JemPD, Oct 22, 2024 in forum: General ME/CFS news
  9. JemPD
    Post

    Ignored, blamed, and sometimes left to die – leading expert ME explains origins of a modern medical ‘scandal’, Chris Ponting, The Conversation, 2024

    i just, i dont even know what to say :heart::heart::heart:
    Post by: JemPD, Oct 21, 2024 in forum: General ME/CFS news
  10. JemPD
    Post

    Do You Sleep Better When...

    Sounds like you've been having a really tough time @Aldebaran's Star , I'm so sorry. I'm afraid I dont know that much about the current state of...
    Post by: JemPD, Oct 21, 2024 in forum: Sleep Disturbance
  11. JemPD
    Post

    Crowdfunding for David Tuller starts October 1st 2024

    54% reached today, 10 days left
    Post by: JemPD, Oct 21, 2024 in forum: Fundraising
  12. JemPD
    Post

    The Concept of ME/CFS

    thanks @Louie41
    Post by: JemPD, Oct 21, 2024 in forum: Diagnostic Criteria and Naming Discussions
  13. JemPD
    Post

    The Concept of ME/CFS

    Im interested in this, wired but tired is a massive issue for me, would like to look into that... have you written about it elsewhere on the...
    Post by: JemPD, Oct 21, 2024 in forum: Diagnostic Criteria and Naming Discussions
  14. JemPD
    Post

    Do You Sleep Better When...

    This just makes me so bl**dy angry on your behalf. I know some doctors are great, but really, so many of them just behave like complete arseholes...
    Post by: JemPD, Oct 21, 2024 in forum: Sleep Disturbance
  15. JemPD
    Post

    The Concept of ME/CFS

    Sorry @Louie41 TATT is short for Tired All The Time - a ubiquitous cause for GP consults. ie being tired all the time but little else in the way...
    Post by: JemPD, Oct 20, 2024 in forum: Diagnostic Criteria and Naming Discussions
  16. JemPD
    Post

    What needs to change to ensure better care for people with ME/CFS with feeding difficulties?

    Forgive me if this has already been said, i'm not able to read/absorb much atm. But it seems to me the most appalling multifaceted catch22 as...
    Post by: JemPD, Oct 20, 2024 in forum: General clinical care
  17. JemPD
    Post

    The Concept of ME/CFS

    I have to do all cognitive work lying flat, which is why i find it so bizarre when I get bodily symptoms after it. Just as an aside, in case it...
    Post by: JemPD, Oct 20, 2024 in forum: Diagnostic Criteria and Naming Discussions
  18. JemPD
    Post

    Do You Sleep Better When...

    i get that. Sorry i spelled it wrong its Tymes Trust not Thymes
    Post by: JemPD, Oct 20, 2024 in forum: Sleep Disturbance
  19. JemPD
    Post

    Do You Sleep Better When...

    I totally get that.
    Post by: JemPD, Oct 20, 2024 in forum: Sleep Disturbance
  20. JemPD
    Post

    Miranda Hart - British comedian

    Big hugs HYTY, thinking of you. I feel the same, its becoming distressing. Its such a tragedy. From being a fan of hers for some yrs, I'm...
    Post by: JemPD, Oct 20, 2024 in forum: General ME/CFS news
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