Many thanks to our NICE guidelines (rapid response) team and to those forum members who are members of or who inputted to the NICE Committee...
My reading is that the authors don’t think they need to make this distinction. They understand the symptom of chronic fatigue is not the same as...
Though I very much agree with what you say, @Hutan , I am not sure that the authors are referring just to GPs or consultants under the term...
My reading is that they are seeking conclusions that they believe relate to anyone who has the symptom of chronic fatigue that can be generalised...
In terms my own experience false optimism, often supported by clinicians most especially in my contact with a specialist ME/CFS service, has been...
Also in some work pension schemes people are only eligible for ill health retirement when they get formal confirmation that they will never...
Had a moment of panic as I struggled to make sense of my photo driving licence (as the codes are only explained in very small print on the...
On an MEA Facebook post of the recent YouTube video on physiotherapy for ME from London’s Royal Free Hospital there was a comment from a patient...
Shame PIP is not on the list.
We do not have any clear consensus on how to deal with discussing prognoses with other people with ME. I remember some years ago not proactively...
I suspect that many BPS advocates were never particularly attached to the deconditioning model, rather what collectively defines them is their...
Sad that the 6 minute walking test was not repeated again on a day two, as this does not enable us to distinguish between increased fatiguability...
We had discussed this at the stage of the committee being established and it does appear that conflict of interest is defined by NICE differently...
Surely if you lack pre morbid scores for the individuals in the various groups the only way to reliably avoid risk of selection bias is to use...
An excellent informative video.
Even in machine translation this reads very well. Though it perhaps overstates our physiological understanding of some symptoms, it is overall a...
If it looks like the submission by the Deutsche Gesellschaft für ME/CFS is something we could get behind, would it be worth us submitting a short...
My understanding is that the sub group who compiled our response to the November 2020 draft guidelines will have sight of the draft and compile...
This abstract indicates the author is imposing their own, potentially controversial, definition of what is a diagnosable disease. Such creates a...
It will be interesting to see the final wording, but the latest 2020 draft NICE guidelines could be interpreted as recommending CBT for ME/CFS....
Separate names with a comma.
