I didn't recognise that Methylphenidate is Ritalin (brand name) until doing a search. Some years ago I re-entered the medical system here in the...
Yes, SEID is one of a number of alternative names that have been floated and advocated for over the years. It never caught on. To my ears...
I agree. A proper criteria for defining our illness should include the phenomenon currently called PEM. Those (like myself) who know their...
Thank you for your efforts David! Bill
Not at all. CFS is a "syndrome" (which appears to be an accurate descriptor of this illness as it is manifested in people with this illness, and...
ME International may have a "position," but they have no evidence to support their contention. Speaking in absolutes when we have no biomarkers...
CFS is precisely the same thing as ME. The only different is the name. The US chose a different name that used in the British Empire. There are...
I'll be getting vaccinated the second I get the opportunity--and I'll be doing everything I can to stake out my legitimate place in line until...
I have never pictured a hospital per se as a place I'd ever wish to be, but I have had visions of being at a sanitorium where I'm propped outdoors...
Yes, but. When I first got sick back in 1984 I felt like I was hit by a viral freight-train. Out of the blue. Then I had positively crushing...
Even when I'm puttering in the garden, I find myself doing one job (say one that involves bending over) and then shifting to something else, then...
Over the past 36 years "pacing" has been the central strategy that I've adopted for trying to manage this illness while trying to have a life. As...
In my case, I never experienced hypoglycemia-like symptoms prior to getting ill with ME/CFS and that remains the case today (36 years later). I...
I managed to play in a few cricket matches here in Los Angeles about 25 years into my ME/CFS. I didn't play well, or in a very competitive league...
Rats! I was afraid you'd say that. Yet, as always, I appreciate your honesty. Bill
What do you think is accountable for the incredible brain-fog so many of us experience? By many measures, I was once considered a person of very...
Do you feel there is any evidence of brain inflammation in people with ME/CFS that's driving our typical symptoms? Bill
That's a reasonable point. As is wanting a very big data set to back up the claim. Bill
I can only speak for myself, but if the video was designed to boost my morale, it has had the opposite effect. On hearing that a mutation had...
Ron Davis' video linked above offered zero context about how common the IDO2 mutation might be. Further, he seems to suggest that ALL ME/CFS...
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