why not bring dr kaufman and chaudhuri in contact ? so that they figure out for us what went wrong. would seem a more plausible and enlightening...
what, if a patient gets so objectively and measurably better ? and obviously was misdiagnosed. should they get their fees back and compensation...
if it was a misdiagnose, how can the patient be blamed for that ? though, nobody is questioning those high fly doctors or the system or the mecfs...
from the sharpe-text illness = patients subjective experience disease = pathology found "illness without disease" because pwmecfs feel rejected...
excerpt from matties interview. would have thought, that especially tinnitus should have resolved ?
main thing, that they are not plain dumb lying at us and hide important details.
what are the odds that someone THAT exceptionally talented falls ill from a debilitating mystery disease after taking up studies ?
then there was this tethered cord, in 2 out of 3 patients (so far, faik) it seems a consequence of the surgery, rather than a previous overlooked...
SS31 = elamipretide which naviaux seems to suggests MitoQ = supplement similar to coQ10 SkQ1 = cardiolipin peroxidation inhibitor, 95% pwmecfs...
it sounds plausible to me, that spine issues cause dysfunction autonomic (...++) and that there may be a collagen problem, i can relate to @Hip...
big stuff, @Jonathan Edwards so it works for mecfs, too... ?
the need to repeatedly ask for basic information is odd. basics should be provided without interested patients asking every piss. as previous...
i would say: YES which ones do you consider proven ? things for parkinson, diabetes or depression ? its trial and error, patients get harmed and...
this may be true for all medical treatments. this spine thing is just very "dramatic". what about thyroid treatments ? how many ppl get useless...
spine issues may be a most common finding within the population - i strongly guess. i understand @Jonathan Edwards suggesting in the...
would patients with such a background like jen (with thyroid disease) and jeff (with eds/virus ?) have ever been permitted to a MECFS stanford...
female patient 1, who went severe mecfs/pots by 12 (i understand), sounds close to things reported "here" (my formatting)
i thought, mecfs-DIAGNOSE requires normal thyroid values. otherwise it would be considered a thyroid-disease. does anyone have a link to the...
could such a much promoted public claim inflict damage on the mecfs-community ? "mecfs patients walk away with frankenstein-stitches and feel...
they made it the mecfs-communities business. they went maximum public with their recovery-treatment. asking questions is not about making anyone...
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