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  1. MeSci
    Post

    Maeve Boothby O'Neill - articles about her life, death and inquest

    I noticed that it refers to "at least 750,000 Britons" who suffer from "this mysterious illness, also known as chronic fatigue syndrome [CFS]" Is...
    Post by: MeSci, Jul 27, 2024 in forum: General ME/CFS news
  2. MeSci
    Post

    Maeve Boothby O'Neill - articles about her life, death and inquest

    Similarly titled item from BBC website - sorry if it's already been shared - I can't keep up! https://www.bbc.co.uk/news/articles/cp38pkvknelo...
    Post by: MeSci, Jul 25, 2024 in forum: General ME/CFS news
  3. MeSci
    Post

    #ThereForME campaign / Building an NHS that’s there for Long Covid and ME

    I've written to my new MP too, via https://docs.google.com/document/d/1xC_TFca18X3dmkURcjG1WGLybZUwPiOEPaS3xXz3UBg/edit#heading=h.hi2k3521177a I...
    Post by: MeSci, Jul 24, 2024 in forum: Advocacy Projects and Campaigns
  4. MeSci
    Post

    Maeve Boothby O'Neill - articles about her life, death and inquest

    ITV Westcountry: https://www.itv.com/news/westcountry/2024-07-22/woman-who-died-after-me-left-her-unable-to-eat-begged-for-help-in-letter-to-gp
    Post by: MeSci, Jul 23, 2024 in forum: General ME/CFS news
  5. MeSci
    Post

    David Tuller Crowdfunding starts May 1st 2024

    I've had an email saying "Hi, (my name)--I really appreciate it! Can I ask if you're a patient yourself, carer, or...? And where do you live? It's...
    Post by: MeSci, Jul 22, 2024 in forum: Fundraising
  6. MeSci
    Post

    [...] LC-MS/MS analysis of ME/CFS plasma reveals dysregulated coagulation [...], endothelial dysfunction, [...], 2024, Nunes, Kell, Pretorius et al

    Should Lacrotransferrin be Lactotransferrin? (near the bottom of the graphical abstract)
    Post by: MeSci, Jul 17, 2024 in forum: ME/CFS research
  7. MeSci
    Post

    Preprint Management of Nutritional Failure in People with Severe ME/CFS: Review of the Case for Supplementing NICE Guideline NG206, 2024, Edwards (Qeios)

    Just a quick note - Trudie Chalder's name is misspelt as Chalter. @dave30th
    Post by: MeSci, Jul 14, 2024 in forum: ME/CFS research
  8. MeSci
    Post

    Chronic Lyme disease - discussion thread

    Merged thread UK: Lyme disease from tick bite leaves Wiltshire woman on drip "Friday 12 July 2024 at 6:34pm A young woman from Wiltshire says...
    Post by: MeSci, Jul 13, 2024 in forum: Infections: Lyme, Candida, EBV ...
  9. MeSci
    Post

    United Kingdom: Cases of people with ME/CFS with severe feeding problems, in the media

    Oh - this sounds terrible.
    Post by: MeSci, Jul 11, 2024 in forum: General ME/CFS news
  10. MeSci
    Post

    One or many labels? a longitudinal qualitative study of patients’ journey to diagnosis at a specialist NHS (PoTS) clinic 2024 Moss-Morris et al

    Is there a difference between Postural Tachycardia Syndrome and Postural Orthostatic Tachycardia Syndrome? Ah - just noticed at...
    Post by: MeSci, Jul 11, 2024 in forum: 'Conditions related to ME/CFS' news and research
  11. MeSci
    Post

    UK: All Party Parliamentary Group (APPG) on ME news, 2020 onward

    Typo here - should be 'an important part'.
    Post by: MeSci, Jul 11, 2024 in forum: News from organisations
  12. MeSci
    Post

    MENSA, a Media Enriched with Newly Synthesized Antibodies, to Identify SARS-CoV-2 Persistence ... Viral Reactivation in Long-COVID, 2024, Haddad+

    I wonder that too - I looked at the thread assuming that it related to the intelligence organisation.
    Post by: MeSci, Jul 8, 2024 in forum: Long Covid research
  13. MeSci
    Post

    The effect of expectancy versus actual gluten intake on gastrointestinal and extra-intestinal symptoms in non-coeliac gluten..., 2024, De Graaf et al.

    Some have sugar added - I can't stand them.
    Post by: MeSci, Jul 8, 2024 in forum: Other specific illnesses
  14. MeSci
    Post

    The effect of expectancy versus actual gluten intake on gastrointestinal and extra-intestinal symptoms in non-coeliac gluten..., 2024, De Graaf et al.

    Can you get Schar Ciabatta rolls? I find them quite pleasantly chewy. I used to love really chewy organic wholemeal bread.
    Post by: MeSci, Jul 7, 2024 in forum: Other specific illnesses
  15. MeSci
    Post

    The effect of expectancy versus actual gluten intake on gastrointestinal and extra-intestinal symptoms in non-coeliac gluten..., 2024, De Graaf et al.

    Over a month??? Please let us know if it does eventually deteriorate.
    Post by: MeSci, Jul 7, 2024 in forum: Other specific illnesses
  16. MeSci
    Post

    The effect of expectancy versus actual gluten intake on gastrointestinal and extra-intestinal symptoms in non-coeliac gluten..., 2024, De Graaf et al.

    I don't find the GF bread I have unpleasant - I have Schar Ciabatta rolls and ASDA GF loaves (just half a slice of toast as part of breakfast)....
    Post by: MeSci, Jul 5, 2024 in forum: Other specific illnesses
  17. MeSci
    Post

    The effect of expectancy versus actual gluten intake on gastrointestinal and extra-intestinal symptoms in non-coeliac gluten..., 2024, De Graaf et al.

    Yes, I don't seem to tolerate oats well either. I use gluten-free pasta of various kinds, and find it fine. I still have occasional diarrhoea...
    Post by: MeSci, Jul 5, 2024 in forum: Other specific illnesses
  18. MeSci
    Post

    The effect of expectancy versus actual gluten intake on gastrointestinal and extra-intestinal symptoms in non-coeliac gluten..., 2024, De Graaf et al.

    I don't seem to be able to cope with buckwheat - I get similar symptoms to when I consumed wheat, I think. I tried it a few times and the same...
    Post by: MeSci, Jul 5, 2024 in forum: Other specific illnesses
  19. MeSci
    Post

    Preprint Real-World Effectiveness of Nirmatrelvir in Protecting Long COVID for Outpatient Adult Patients – [...] RECOVER, 2024, Wang et al.

    Should 'Protecting Long COVID' be 'Preventing Long COVID'? There also needs to be clarification that Nirmatrelvir is the proper name for Paxlovid.
    Post by: MeSci, Jul 4, 2024 in forum: Long Covid research
  20. MeSci
    Post

    TeamClots vs Cochrane

    (re Douglas Kell) Maybe showing my ignorance here, but was surprised by: "He graduated from the University of Oxford with a Bachelor of Arts...
    Post by: MeSci, Jul 3, 2024 in forum: Long Covid news
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