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  1. Seven
    Post

    Tinnitus poll: Do you experience it?

    I feel my Titaanus is in my brain if that is even Posible. With my POTs when I am presyncope I hear more like all my internal things. Is not fun...
    Post by: Seven, Apr 7, 2018 in forum: General and other signs and symptoms
  2. Seven
    Post

    The Medical Care Blog: The myth of female hysteria and health disparities among women

    Maybe we need a chronological missing data papers and computers paper publish to bring attention to the tactics of this group. “ Satatistical...
    Post by: Seven, Mar 29, 2018 in forum: General ME/CFS news
  3. Seven
    Post

    The Canary: More coverage of Wilshire et al's latest PACE study

    We need a fact sheet sent to media too :)
    Post by: Seven, Mar 24, 2018 in forum: General ME/CFS news
  4. Seven
    Post

    United Kingdom: Science Media Centre (including Fiona Fox)

    How can we update this fact sheet and have it signed by the 100 people or maybe as an appendage from the PACE reviewers so maybe our own fact...
    Post by: Seven, Mar 21, 2018 in forum: News from organisations
  5. Seven
    Post

    Does anyone else get IBS as part of a crash?

    ME too IBs w crash
    Post by: Seven, Mar 21, 2018 in forum: Gastrointestinal and Urinary
  6. Seven
    Post

    Web article. Stem cell research solves baldness

    SO everytime is there more money to male boldness than ME. Since they are solved, does that mean we get the money :rofl:
    Post by: Seven, Mar 20, 2018 in forum: Other health news and research
  7. Seven
    Post

    What can cause ferritin levels to drop very quickly?

    Hmm if you b12 is high and iron low how is your folate?
    Post by: Seven, Mar 20, 2018 in forum: Vitamin B12, D and other deficiencies
  8. Seven
    Post

    CBT- Jen Brea Twitter

    I think this is miss information too. I don’t know how things got so confusing so bear with me. I ahve low Nk cells ( and so do a lot of the Cfs...
    Post by: Seven, Mar 19, 2018 in forum: General ME/CFS news
  9. Seven
    Post

    What can cause ferritin levels to drop very quickly?

    My sister struggles w it, she has blood specialist ( hematologist maybe) and they have her in b12shots and iron. Something to do with her b12...
    Post by: Seven, Mar 19, 2018 in forum: Vitamin B12, D and other deficiencies
  10. Seven
    Post

    New German guideline for ME published today

    Would be interesting to dig who funded this organization. I have the feeling, that like EC was chair of UK and the BPs model was driving the...
    Post by: Seven, Mar 17, 2018 in forum: General ME/CFS news
  11. Seven
    Post

    Esther Crawley

    Wait which Edwards?
    Post by: Seven, Mar 16, 2018 in forum: UK clinics and doctors
  12. Seven
    Post

    Excellent radio Bristol Sonya chowdhury interview

    I like she used the word “scandal” they have to keep using this word on all the interviews. To be honest we need a few more things on each...
    Post by: Seven, Mar 16, 2018 in forum: General Advocacy Discussions
  13. Seven
    Post

    Perceived fatigue and energy are independent unipolar states: Supporting evidence - B Loy +

    My fatigue and energy cap are independent, I feel fatigued as a state, So lets say I sit and feel miserable I want to lay down (not sleepy) but...
    Post by: Seven, Mar 15, 2018 in forum: Research methodology news and research
  14. Seven
    Post

    The CMRC's new biomedical focus and big ambitions (my new blog)

    Only in UK: Cheat your way up and save disability money and we will give you a tittle and make you in charge of our Kids!!! This needs its own thread.
    Post by: Seven, Mar 15, 2018 in forum: General ME/CFS news
  15. Seven
    Post

    Seeking An Elusive Cure - article on Maureen Hanson and her Collaborative Research Center

    That one spells Penis in Spanish! why we do not like that one (my kid thinks is hilarious). Post-exertional crash, describes better for me. I do...
    Post by: Seven, Mar 14, 2018 in forum: General ME/CFS news
  16. Seven
    Post

    Treating patients suffering from myalgic encephalopathy/chronic fatigue syndrome (ME/CFS) with sodium dichloroacetate, Comhaire 2018

    Can somebody explain to me please what is refractory ME? never heard of the term.
    Post by: Seven, Mar 12, 2018 in forum: ME/CFS research
  17. Seven
    Post

    Mark Edwards: What relationship do stressful life events, neglect & abuse have with functional neurological disorder (conversion disorder)?

    This guy has to be stopped in his track sooner rather than later.
    Post by: Seven, Mar 9, 2018 in forum: Other psychosomatic news and research
  18. Seven
    Post

    Correspondence from the DWP for 2004

    Is hard to read from cel but who are this plp copied ( why the government emails?!) I don’t think even when they do a grant all that involvement...
    Post by: Seven, Mar 7, 2018 in forum: General ME/CFS news
  19. Seven
    Post

    Dr Myhill’s complaint to GMC about PACE authors.

    This helps, but I do question the use on the POTs plp. If I go by mine, I would literally do nothing, and also I have a question that no doctor...
    Post by: Seven, Mar 6, 2018 in forum: General ME/CFS news
  20. Seven
    Post

    Petition: Remove CBT/GET from NICE guidelines NOW (ALL COUNTRIES can sign)

    bump
    Post by: Seven, Feb 24, 2018 in forum: Petitions
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