Having this done on Monday. I have neuropathic itch on my arms, and it’s been prescribed for that. Mostly it’s on forearms but can go higher. The...
Hi.. I have a narrow small face and also v sensitive to weight on face from glasses. I bought from this store Roka. Each product page gives the...
Have wondered same.. think it would be a really interesting study. There are lots of new diagnostics in development that could be looked at for...
https://x.com/janetdafoe/status/1848483821395816468?s=6 “This is going to be a great podcast series with Dr. Kaufman and Dr. Ruhoy. You might want...
PEM for me is very head / brain based if brought on by socializing — an increase in intensity of my baseline symptom of inability to process...
The latest thing being marketed to people with ME by Drs Ruhoy and Kaufman.. abdominal compression syndromes or iliac vein compression. Seems like...
She anticipated this response, obv seeing the implications of her story, went ahead with it anyway, and is now criticizing Severe patients aka....
https://meassociation.org.uk/2024/10/research-random-controlled-trial-of-oxaloacetate-for-improving-fatigue-in-me-cfs/ Results Anhydrous...
2 bad infections, first was influenza for first time, 3 month gap, second respiratory infection, then four month gap before ME onset.
https://www.omf.ngo/altered-metabolic-pathways-mecfs/ The ME/CFS Collaborative Center at Uppsala, directed by Dr. Jonas Bergquist, recently...
I went through peoples names. If they had involvement in ME research or shown awareness of either ME or PASC with PEM in interviews, I bolded...
De Meilier’s input unlikely to be reliable. Reports of his profiting off patients, and wrong headed theories, and inappropriate treatments have...
@Jonathan Edwards @DMissa, is there anything relevant in the work of this company which is developing more targeted anti-inflammatory and...
He apparently has a daughter with ME.. he funds some OMF projects.
[MEDIA]
I tried taking it and had bad experience. I would recommend cutting the 25mg tablet in half w a pill splitter if you are sensitive to meds. My...
There are a number of threads on r/cfs about these drugs too. Some people found it helped their symptoms, some didn’t. Doesn’t seem to be a magic...
This was ok, I guess good for the BBC but as a non British viewer I find it awfully “polite”, this British way of “keep calm and carry on”, don’t...
[MEDIA] Go to this thread for details and discussion:...
John communicated all that so perfectly.. just heartbreaking to hear of his loneliness and to identify with it.
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