Thank you @Michiel Tack for your work on this. Please add my name to the list. Snowflake - ME patient since 2005 and member of S4ME
But we already have a term for this - it’s called graded activity
https://www.drmyhill.co.uk/wiki/Response_to_the_paper_%27Assessing_cellular_energy_dysfunction_in_CFS/ME_using_a_commercially_available_laboratory_...
The following is an extract from Dr Myhill’s book “Diagnosis and Treatment of Chronic Fatigue Syndrome” (page 44): (My bolding) So I don’t...
I can’t see how the problems with storage and sample time could account for the strong correlation between the degree of mitochondrial dysfunction...
They are recommending graded activity, goal setting and exercise as management strategies for ME/CFS. So the booklet does not seem all that...
Thank you @Adam pwme for all your hard work in making these videos. They really are exceptionally good.
Signed Did you check your junk email folder? That’s where I found my confirmation email.
I’m so pleased you were able to manage this trip to the seaside @Naomi10 and enjoy the beautiful open landscape. I found it quite moving to read...
[MEDIA]
Well I don’t know if it is common practice but it’s certainly not the correct practice according NICE’s own principles as set out in the document...
It’s interesting to note that the current NICE guidelines for insomnia recommend sleep hygiene although they do acknowledge that there is...
Thanks so much @ahimsa for organising this small Millions Missing event at your local library in Oregon! It sounds like you are doing a great job...
We shouldn’t stop just because the target has been reached, there are still 15 left hours of the campaign! I sent a second donation a little while...
It’s great that the Lincolnshire ME/CFS unit does home visits and that you sound to be happy with the support you are getting from them so far....
Done
I think it’s a great idea. A video like this might also be a powerful tool for demonstrating the lack of understanding, negative attitudes and...
Here’s some information about the work he’s doing with Karl Morten’s team at the University of Oxford: https://www.wrh.ox.ac.uk/team/jamie-strong
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