Anyone, anywhere, anytime. I’m tired of the rehab-fetish. The Norwegian study showed that it doesn’t work for ME/CFS, and so many with LC...
The Government isn’t going to just hand out money to researchers. They are going to do one of two things: Create a bureaucracy to hand out the...
IIRC, most of the money was spent on population studies and not on actually researching the virus or the patients. The people in charge did not...
Yes and yes. I don’t know how much help exactly, though. About 300 NOK py. £21 / €25 / $27 at the current rates. If you’ve got the lowest...
I would love to see the evidence that shows that this is a safe and effective approach for pwPEM. How to make pwPEM crash hard 101. Why can’t...
I believe that @Jonathan Edwards recently said something along the lines of: The quantity in the blood is irrelevant because immune cells in the...
Let’s assume that misfolded proteins are at the heart of this. These are more or less random thoughts: What causes and or drives the misfolding?...
I skimmed some posts. It seems like he goes beyond the evidence regarding e.g. meds and the immune system. He also encourages strict rest for...
@mariovitali liver
A poll sounds like a good idea. Cognitive efforts reduce my sleep quality and duration.
It’s a rambling paper. They go way beyond the evidence as well. Some «highlight»: Because exercise training is recognized as an important and...
This is depressing, because it indicates that the psycho lobby will not stop even if we find a biomarker, and treatments for some patients.
@Jonathan Edwards Some googling told me that FFI results in an accumulation of misfolded cellular prion proteins (PrPc). I found a couple of...
Thank you! I would not be able to do that. I get PEM eventually. I believe the most common symptoms are, they usually come in this order:...
If, in theory, you could lie in bed and work, the limiting factor would be concentration and/or mental fatigue? I’m just trying to understand your...
Could you work 100 % from home with something cognitive?
My legs are the first to notice cognitive over-exertion, other than my head. They get really heavy and sluggish.
That was my initial thought. But then I thought that «Jonathan would probably say that we don’t know if it’s fully contained in the brain», so I...
I think it’s worth looking at what very severe patients say give the PEM. Idk where to find any info about it, though.
Our emotions only exist inside our body. As far as the brain goes, it’s kind of like an analog computer (the software aanalogy is wrong). I don’t...
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