It’s still possible to make a reasonable judgement on how well a questionaire and its results matches with how the patient group understands and...
That’s grim.
Can you elaborate on both of those claims? Why and how would muscles care about your autonomic state, and why and how does mindset determine the...
Good on them for publishing mostly nothing-results and not overselling.
This. It should not be required in the first place. That being said, I can understand why some patients would prefer to work this way.
Are the scales calibrated or verified with regards to the unique characteristics of PEM? There’s a reason FUNCAP was created - PEM does not fit...
@Trish I completely agree with you. I was thinking about getting scientific «proof» that non-pacing is harmfull. We all know it, but all of the...
Can we use studies on non-pacing behavioural interventions to show that there is a dose-dependent relationship between non-pacing activities and...
Do they fully understand what severe Long Covid can mean? Exclusion criteria: Blood clotting conditions Do they check for clotting issues...
Selective reporting and a bit of data torture will get you a result.
I don’t agree with that interpretation in general, but I can understand why someone with ME/CFS would be very wary of victim blaming. I have a...
I have zero confidence in the governments of the world’s ability to handle this properly. Protect yourself and your loved ones.
Are there any reasonably accessible (for patients) ways to test for these genes?
Is it proven that >10 day infections become chronic in general, for Covid-19 or for any of the other mentioned infections? They use both PACS and...
It sucks - I’m sorry you experience it as well. They also don’t understand how traumatizing gaslighting has been and why I’m extremly critical of...
When can it be justified as a part of care? My personal experience as a 29 yo «child» to my parents is that every single question from healthcare...
Yeah, I think you’re right. I might have jumped to conclusions, I believe I googled LDH Leukemia and found that elevated LDH was a poor sign, and...
Does anyone have any info about dosing?
Really, really important message. For 99 % of people in my life, I only exist through my phone. I have not physically met anyone since July except...
Could a higher selection be dependent on genetic mutations like above? It seems to be beneficial for certain types of cancer according to my...
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