Am I reading things correctly when "ME/CFS-like" would be anybody that has at least one of "moderate or severe fatigue", "PEM", "unrefreshing...
Why don't they just neuromodulate so hard that cognitive biases dissapear?
I think it's a nice gesture that all of the donations go straight to medical research projects as the costs of running the foundation are covered...
WE&ME seems to have some more innovative approaches to attract funding from the outside as far as their social media presence would tell. Whether...
But my understanding is that that post is not correct (or does 30% and 4% refer to the amount of members that are patients that donate?). We have...
Where are these numbers coming from? From what I initially stood the numbers were just numbers of members not numbers of patient population per...
I'm slightly sceptical we can come up with a solution if we don't know where the problem actually lies yet. I think we have to first understand:...
Well done @Dakota15 !
The ME/CFS biobank GWAS data being used here appears to be the following, which is not the exactly same one as in the recently discussed paper by...
Tagging @PeterW who has looked into the charities quite a bit and possibly has some answers to the above questions.
I think it's really important to understand why seemingly many studies and charities are doing poorly in recruiting more people. The numbers you...
At least they stopped discussing the biomarker breakthrough of cortisol. Oh wait, they haven't...
Would one have to carefully consider the resources one provides? Would one run into problems when for example providing the above resources?...
Most information resources for ME/CFS often seem to be partially sound before they start discussing things for which there is no evidence of...
The first author has also published a meta-analysis reporting that differences between psychotherapy treatments in depression and “placebos”...
Interesting to see that the first author is a clinical psychologist in Amsterdam who publishes a lot on CBT and who is part of a Research Program...
It reads like they also looked at whether someone reported symptoms for 1-2 months (31%) and then whether they reported symptoms for more than 3...
I completely agree and my experience with dementia is exactly the same (and dementia also does not seem like a good fit for the reasons you...
I wouldn't be too sure about that. In the case that dementia is indeed perhaps to complex its possible that someone that is actually knowledgable...
100% agree. It certainly impacts far more than memory. It's absolutely horrible, live-destroying and impacts every part of daily living for you...
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