It seems the ME/CFS participants may be doubly unpresentative of pwME given the choice to use Fukuda criteria, and the differences in blood cell...
This study shows there is more to FM than is popularized in the literature. It is surprising, and yet not, how something so fundamental to...
Yes, we definitely need the what's going on underneath issue(s). It would be good to see a wrap up of studies showing similar findings in the...
Thanks for this stat, @RedFox So, ME is common! (My recall is seeing percentages, but not seeing anything about where the benchmark is for...
I did a 2 day CPET. I felt horrible after day 1. Several symptoms were exacerbated: fatigue of course, weakness, I became quite uncoordinated, and...
Absolutely, weakness. Maybe that's where the term Raggedy Anne Syndrome came from. I feel, just limp in PEM. Also, sometimes in such pain during...
That would be great if we could look for the NIH publications on its intramural study to start in 6 months. I read the 6 months to a year estimate...
Thanks @Sly Saint Of course (!), this declaration "cfs" is common is what the BPS Movement has aimed for, in designating ""cfs" a psychiatric...
It would be amazing if this depth of research was applied to ME. But, wait a minute, in-depth research has been done by the NIH, but we're still...
"Seeing a doctor", "seeing a therapist","seeing whomever", in everyday language and understanding means some kind of action is taking place. The...
Interesting the authors are saying this is a common condition. I'd have to review numbers, but my recall is CFS for any age category is not...
Good point @Trish about coordinating medical education about ME. Very difficult to do though, as the powers that be still don't seem to do it....
Good point in the article about doctors reacting to hearing about ME. I would bet they're told their medical education is thorough. I've seen...
Speaking from my own experience, and understanding of what went on with the two names: Myalgic Encephalomyelitis (ME) and Chronic Fatigue...
:thumbup:
I would like to know what the BPS definition of "activity" is. Do they use a narrow definition? Is it just about going to the gym, and vigorous...
This is a mind over matter approach, like so many others: don't let your symptoms guide your behaviour. Except, one's legitimate symptoms may be...
Yes.
Thanks @Sly Saint I wonder how many of these NHS facilities need literature, and program updates - a change of focus.
The film sounds like it could be interesting. But, I don't like the idea of lumping all the conditions into one name. We need to know a lot...
Separate names with a comma.
