I read the first few sentences. IMO this would get some backs up right away. The Canadian Consensus Criteria which is 115 pages long:...
It's very disappointing, but not surprising that the NICE guidelines are being ignored. If there was a biomarker, or a biomedical medication,...
@Kitty That is awful. But I suspect it is standard practise. For a pwME, the phrase " under a doctor's care" can mean nothing. There's nothing...
Agreed, it should be self evident. This definition is a mish- mash. It looks like a few people added bits and pieces as they went along. This...
Undoubtedly, there are recognized steps required or at least suggested, that are involved in a "proper medical examination", as the authors put...
Yes, it would be easy to just continue with the message that BPS practitioners know best. Especially where contested diseases are concerned. I...
Further to being blamed if pacing doesn't improve one's health, it may keep one from "falling off a cliff", into more severe ME, but IMHO, it does...
Thank you. As you describe, there could be several versions of pacing, with psychotherapists vying to be top dog with their version. IME, pacing...
Contrary to the BPS naysayers, there are objective measures that indicate physical dysfunction caused by ME. For example, research findings of...
Absolutely!
In addition to cutting off support, requiring disabled people to repeatedly reapply for financial support can be very stressful, and lead to...
Yes, I think it's a reasonable guess. The Canadian ME/CFS Overview, page 18, notes edema or demyelination as findings on brain MRIs of pwME. I...
I know alcohol intolerance has been acknowledged by some ME specialists. If I recall correctly, there was reference made to this in a Canadian...
Thank you for this @dave30th And thank you to Dr. Kane. We very often see that it takes living with controversial diseases, or caring for...
Third party corroboration seems to be the only way to get the stamp of approval in many, many areas of life. It would be quite the departure...
I know of a couple instances where MS has been mistaken for ME, and vice versa.
Yes, better to have sympathy directed one's way, than the reverse response.
:thumbup:
From the study: "....similar neuroimaging findings in the brains of people with both MS and ME/CFS." ( my bolding) Does the above sentence mean...
Such appalling, and very sad situations! And, the gaslighting fans out to relatives and friends of the individuals in question. Either for...
Separate names with a comma.
