Hi @hellytheelephant, I can’t see your blog link?
The charitable foundations are not misleading - they are working closely with the national hospital for neurology for the majority of these...
I agree. They are two different conditions, and most people with ME don’t have it. But, my point is that people with mitochondrial disease can...
Yes but in practice no one gets most of these conditions ruled out. In an ideal world patients should be tested for at least a proportion of...
@Jonathan Edwards the problem is you keep saying things that are either incorrect or inaccurate. On a science forum. First, you said people who...
Yes, but that’s not the full list I was thinking of, as I was talking about a list taken from the MEA’s “purple book” (it was first posted on this...
Yes, it is a different disease to ME. (PS I know this is off topic, so feel free to move this to a different thread if needed. And sorry that it’s...
This post and the next have been copied and following discussion moved from this thread: Circadian rhythm disruption in [ME/CFS]: Implications...
This is not true though. “Data were compared with those for healthy control subjects and patients with Myalgic Encephalopathy/Chronic Fatigue...
Yes, there’s several others (non drowsy & drowsy ones) on prescription. I think fexofenadine is the one they’ll try next if Cetirizine &...
I loved your blog @hellytheelephant! I loved your tips on getting started, like “reduce your mental load”. It’s all made me think about starting...
@daftasabrush you probably already know this, but many of these DTC (direct to consumer) tests are inaccurate. I looked into this a couple of...
Does anyone know if there’s an indefinite award for old style ESA? Or do they always assess every 2 years? I found out that it does exist for new...
We just had to fill out my PIP form again - but I have to fill it out every 2-3 years! The reason for this is because the nurse who assessed me...
Im waiting for this drug to come to the U.K. I’m pretty sure it’s an acute medication that works on anti CGRP pathways? The good news is that...
Thank you very much @Binkie4 , @Wits_End and @Kitty for your help. Just thought I would update. Unfortunately it looks like I’m having some of the...
To me this simply looks like a platform to connect people with neurological conditions, to the relevant therapists that could help them. People...
I can understanding wanting to get better & improve your functioning. I would just caution that neuro-rehab is known to be intensive, because of...
Me again.. a few people on this thread have written that they’ve tried stockings/ tights / socks /leggings etc. Have any of you been tested...
Ok I’ve had a chance to test it out now. They really are incredibly comfortable. I can hardly feel them. I wasn’t sure on the sizing & was worried...
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