yes! I found this selection of products for putting on / taking off compression garments easily, I might get one of them when I buy the stockings:...
Do you usually use the medium level support or the light support, for the Comfizz? The company looks good as the garments do generally seem quite...
I haven’t tried these before but thank you for posting this! I’ve been looking for new underwear for a while, something colourful but also not...
I just saw these Twitter posts and then remembered this post here too. (thanks @livinglighter for posting this Twitter post on the other NICE...
I promise I’m not trying to argue, but in terms of the conditions strategist is talking about above, viral infections can trigger them. (I...
Will PM you as this is a non members only thread!
It’s a difficult question, but prior to last year, I had become absolutely certain that I had ME, and only ME that could explain my symptoms.. to...
I think this will be very relevant for Pw with severe and very severe ME. If you need to be admitted to hospital, you have a right under the...
I think it’d be a good idea to speak to GP about arranging vaccination in a hospital. People who have severe allergies / adverse reactions are...
Yes, sure.
I know it shouldn’t be the case but this is the way things are in the U.K. I’ve found that in order to get help you have to “jump through hoops”,...
that’s so interesting, I have to do the exact same thing! I’ve had severe upper stomach / acid reflux type pains since I was very young, and they...
My PoTS doctor is writing to my GP to tell them to prescribe compression tights (not stockings). So it has to go up to my waist. I had a few...
Yes good point, I’ll change it.
This is some of the information gathered when discussing my personal housing situation. thanks especially to the other members who knew a lot more...
Addendum: intensive care There may be a possibility that following surgery, you may be transferred to intensive care (Usually HDU, rather than...
This is a post collating what I learned, when trying to access surgery as someone with the symptoms of Severe / Very Severe ME. I hope it is...
And in many cases, including the conditions you’ve mentioned above but also others, not giving the correct diagnoses or not referring onwards, can...
Yes, you are right, and also it is still a diagnosis of exclusion from NICE’s point of view, as far as I can see. (my bolding below): the NICE...
Hmm.. not really. ANS dysfunction, ie dysautonomia, is found in many conditions which have been demonstrated to be caused by a physical...
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