Dr. Roach took the exact sort of approach most doctors who don't know a lot about this disease should take. He's read up on some recent research...
What drives me bonkers is seeing ads for these sorts of therapies on Twitter and testimonials on YouTube...they always use the word "recovery." I...
@Sunshine3 - Just wanted to indulge in your frustration...as I feel the same way. Ian Lipkin said there is a publication coming out...we are...
Sharpe seems to insinuate legal action whenever someone questions his actions. The irony is, a legal case would expose him to total disclosure of...
Is AfME a non-profit under the law in England? In the US, salaries of employees is public information for non-profits...they are required to...
I get the sleepy eye situation too, it's like I can't open my eyes all the way for full expression...but it's always both eyes. Sometimes my...
@Dechi - I'm sorry you are going through this. I only have extreme muscle weakness intermittently, it can be bad when it sets in...especially in...
Link to David Tuller's new crowd-sourcing for the coming year: https://crowdfund.berkeley.edu/project/9730/wall ETA: I see that David just...
Dr. Maureen Hanson states in this talk that she will be doing a study that examines extracellular vesicles: [MEDIA]
Mine sounds like an amplifier that is plugged in (sort of a hum/buzz)...it can get very loud. It tracks with my cognitive dysfunction.
I've donated to SMCI because of him...damn. I hope he sticks with ME/CFS...and I hope he knows how individually admired he is by patients.
It might be worthy to highlight the extreme vetting the NIH is doing for the intra-mural study. Dr. Nath reports have to screen 200 suspected...
The webcast is now available for replay: http://healthlibrary.stanford.edu/montoya2018.html
I posted a link above...also...it's the "right" on both sides. I transcribed it incorrectly the first time but have edited.
I don't know if there is a dedicated thread on this talk from January where Montoya discusses some of the current research:...
The right arcuate fasciculus and the right inferior longitudinal fasciculus. ETA: I got left and right mixed up.
I agree. It was frustrating to have time taken up with a homeopathy and EMF question. Montoya is doing follow up research based on Japanese...
At the panel discussion after a screening of Unrest tonight at Berkeley, Dr. Davis mentioned that the $5million donation to OMF by the Pineapple...
Interesting that Dr. Montoya said when he started at Stanford, medical staff received a letter telling them not to see ME/CFS patients. This sort...
"[PACE] will go down as one of the biggest medical scandals of the 21st Century." - Carol Monaghan
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