There was another interview with him (maybe it was a CDC call?). He discussed how long it has taken to run the patients. I believe they are...
It seems like the NIH is actually taking ME/CFS seriously. They are starting small, but trying to dig deep. Nath makes the point that "fatigue"...
I've been listening to an audiobook called "The Obesity Code" by Jason Fung. He makes the case that weight increase is all about hormones,...
Just brain-storming...but is there someone here who can formally represent the patient community on other days? Say, as a representative for...
Whoa...Naomi...powerful stuff.
In the US, data is held in trust for the public. There are legitimate reasons why some data can be withheld, like for security purposes. In my...
If public funds were used to produce the PACE data, to me...the data is for the benefit of the public and should be produced if the law states...
Yup, especially if you can get a web forum dedicated to a desperate patient group to publish on it without any actual published research!
This is why we still need the researchers to keep working. This is a drug that was developed and is now seeking a home. They did not study...
It would be nice to see a group of psychologists that take an adamant stand controverting Wessely's theories and speaking up for a more...
I can't eat carbs anymore...but boy do I miss my popcorn frenzies!
:( Thanks @hixxy...you are so good about posting new articles.
Just wondering if anyone has seen these papers and has access to them. Stork delivered this to my inbox today and they look interesting. I keep...
@Dial It In - I was sent for a $7,000 sleep study. Afterwards, the sleep tech specialist who has been doing this for 20+ years and was up all...
@Milo - I'm glad you mentioned his referencing Tofacitinib. He mentioned it at the last CFSAC meeting and about trialling it, but I could not...
If I'm not mistaken, the Collaborative Research Centers were funded by many departments in the NIH contributing a bit of money each. This...
He also mentioned that the Hutchinson Foundation has some new findings. Sounds like there should be some sort of publication soon.
Interesting and worthy debate. @petrichor - Have you experienced ME-adapted CBT? What was your experience? Given that you have had years of...
Your posts of late are intriguing me. Whether you intend to or not, you are challenging people. We all respond differently to hardship. You are...
@MErmaid - I've been loosely following this thread, but wanted to mention Amrit Shahzad. She is the newest member of CFSAC and at the last...
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