@Robert 1973 - Thank you for sharing such a beautiful song. I miss riding my horses.
Hmm...hopefully this is fall-out from the Independent article :)
They no longer feature a dropdown banner tab where you can "shop" for #MEACTION t-shirts, etc. If you go to the MillionsMissing campaign page and...
Reduced functional capacity is a big component of PEM for me. Exacerbation of symptoms (physical and cognitive) means that I cannot read, I...
Wish we had more studies. My background follows this sort of progression. I got ill eight years ago at 32 and had 2 bad years with marked...
That's a hard one @Subtropical Island. For me, this is a major symptom. Over the past eight years, I only have 2-3 days per year where I feel...
Yes, I have IBS flares specifically during crashes. My recent experiment with the ketogenic diet has helped with this.
Given your focus on the inflammatory nature of ME/CFS, will your research center be pursuing any drug treatment trials? If so, which ones are you...
Right, but Jen was criticized for featuring her improvements with Valcyte on "Unrest" too. I understand the concern, its just that most people -...
I believe the message she is trying to spread is for doctors to inquire, investigate, and try with this disease...not just turn patients away....
@Cheesus - I remember you being quite down about the state of your situation a few weeks back. You have been highly effective and accomplished...
Somedays the analogy works better than others. I've found kinship with a few other friends who are also "spoonies." The common theme is that we...
I thought about the barbarism too. But, isn't there some common sense in this study too? If you have a TBI, signaling pathways can be disrupted...
I really appreciate how she is able to unify concepts about the disease...dare I say, it gives me hope. Thank you for posting it today! Of...
@Kalliope already posted this interview in the "News from Norway" thread. Mady Hornig provides some interesting insight into subtypes, how the...
Just finished the book. It's good, it's advocacy. It's simply written and the text is spaced...plus it's very short. I will be passing this...
I don't understand HRV and how to properly monitor it. I should clarify that I was using Oura's Resting Heart Rate tracker. I noticed that when...
If POTS is a major symptom, the Oura is not a substitute for a HR monitor. It has worked for me, but my POTS is mild/intermittent. The small...
Oura is releasing a new model in April 2018, much smaller than the current model. I believe it will include better HR monitoring options. ETA:...
I have had episodes, not as severe as what you mention. It comes out most in my hands, when I'm trying to type or text and movement becomes...
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