@TrixieStix - I hope this potential diagnosis leads you to appropriate treatment. It can explain so many issues you've had.
But could effectiveness be measured pre- and post-treatment using a CPET?
Fascinating research you've posted. No, I don't know of current studies, but I was on it for two years as a teenager and I've wondered if its...
Well, if researchers don't figure subtypes out soon, one day we'll be called "ME/CFS Spectrum Disorder."
I was crushed by this news this morning. What is clear (to me) is that this disease is ill-defined and we are lumped together under the umbrella...
The current NIH Intra-Mural study is comparing controls to an ME/CFS group and a post-Lyme group. Sample sizes are not great (I believe 20 each),...
Hmm...did the PACE trials discuss provider transference? I suppose we should be greatful that he gave us attention? This was a gutless...
Wow...this sort of behavioral modification sounds like a cult influence. We are isolated enough. I'm sorry you lost a friend and I'm sorry your...
So true. The world is full of people trying to commit themselves to other's truths. I don't bother debating with someone who wants to believe in...
@Trish - Thank you for sharing. I live in a mecca for alternative therapy and everyone knows just what therapy one should be doing to heal. When...
I think these sorts of therapies can be situationally helpful for someone who is mild and suggestible. If you are generally a skeptic (only...
Hmm...I'd love for ME/CFS to get a Liz Taylor-status celebrity to make fundraising for this disease their personal mission.
Right? Another book about M.E. and no audio version. I'm going to have my husband read it to me. I miss reading :(
Subcutaneous injection of 5,000 mcg every three days of methylcobalamin.
Same. I have some friends in the medical profession. I'd like to read how she portrays it and pass it along if I think it represents our...
Great reviews on Amazon. Just ordered it.
I just tested positive for echovirus 30 from ARUP Labs and have been reading up a bit (as we do with any lead...). It seems that enteroviruses...
Yes, I've had nights where I have insomnia, wake up early, and buzz all day. I also have stretches of hypersomnia, sleeping 10 hours followed by...
Separate names with a comma.
