Bizarre, indeed. I am so sorry to hear of this appalling situation in Finland, @JES. I shake my head in dismay and am so saddened to think of...
I am not advocating for IV saline. My point was that desperate situations can result in desperate measures. When a parent is facing the prospect...
Perhaps not, but children not being able to attend school on a regular basis does trigger misinformed "officials" getting involved resulting with...
Thank you @Jonathan Edwards for the honesty and straightforwardness of your above statement. Your words are chilling to the bone when their...
After you connect to the link that gives the 4 hr program, look to the right where it says "Living with Chronic Fatigue Syndrome 48 min 46 sec"...
Excellent! Thank you so very much @Adam pwme. I hope your excellent videos find their way to the powers-that-be who need to have their eyes...
Another thing that has caused us a great deal of harm and needs to change is the notion that ME or CFS is "unexplained fatigue with no medical...
Thank you @Perrier for your eloquent reply. You are, of course, right. Your despair and cry for help for all those suffering from this horrible...
I want to say one thing when it comes to comparing what the BPS bunch proposed as compared to what patients would propose when it comes to...
Yes, Yes Yes. Thank you @duncan for these words of wisdom. So spot on and the basis of many of our problems with the medical profession. Thank...
I look for leadership from the medical profession to act with integrity. Why is it that those who have dedicated their lives working with ME...
I'm sorry @rvallee, I don't understand what you mean. Can you please explain? Thanks.
This whole British thing is upside down. How can you have effective treatments/rehabilitation if you don't even know what it is you're...
Thank you for sharing your and X's story @Yayab. This treatment of ME patients is SO insane and infuriating. What is the matter with these...
While listening to this afternoon's presentations, one cannot help but realize how out of touch, incorrect, shallow, and harmful the CBT/GET...
CBT= Chalder's Beliefs Techniques
CBT = Can't Be Trusted
I also think that many of us have tried this on our own. I know I have -- over and over again. In the past, when I got to a place where I was...
"Rehabilitation." What rehabilitation?? Every time I hear that word in regard to ME/CFS I want to scream. What planet are these people living...
How did you get it, Trish. So far I haven't been able to find it. Thanks.
Separate names with a comma.
