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  1. Joh
    Post

    Members of the European Parliament call for more funds for research into ME/CFS

    Excellent German article about the resolution, the open letter by international scientists and the open letter by German patient organizations....
    Post by: Joh, Jun 28, 2020 in forum: General ME/CFS news
  2. Joh
    Post

    Members of the European Parliament call for more funds for research into ME/CFS

    Open letter from all four German patient organizations In response to the European Parliament's resolution on ME/CFS, the four German patient...
    Post by: Joh, Jun 24, 2020 in forum: General ME/CFS news
  3. Joh
    Post

    Members of the European Parliament call for more funds for research into ME/CFS

    Thank you to everybody involved! :emoji_bouquet: Reactions from Germany so far: - No media reports so far, although press releases were sent...
    Post by: Joh, Jun 20, 2020 in forum: General ME/CFS news
  4. Joh
    Post

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    This was posted an hour ago. The physio account has 28.000 followers. [MEDIA]
    Post by: Joh, Jun 10, 2020 in forum: 2021 Cochrane Exercise Therapy Review
  5. Joh
    Post

    ME Action: The EU committee on petition is preparing a resolution on ME

    Many thanks to the volunteers at the European ME Coalition and everybody else involved, impressive work and cooperation! :hug: [MEDIA] Thanks to...
    Post by: Joh, Jun 10, 2020 in forum: Advocacy Projects and Campaigns
  6. Joh
    Post

    ME/CFS conference in Hamburg, Germany, June 22 2019

    Videos of the talks can now be watched here: https://vimeo.com/showcase/mecfs-forum [MEDIA]
    Post by: Joh, May 14, 2020 in forum: ME/CFS research news
  7. Joh
    Post

    ME Awareness day / week / month and #MillionsMissing May 2020

    Some links from Germany The main action was that the health minister and more politicians got postcards from pwME. There was also some great...
    Post by: Joh, May 13, 2020 in forum: Advocacy Projects and Campaigns
  8. Joh
    Post

    Millions Missing events, 9th to 17th May 2020

    [MEDIA]
    Post by: Joh, May 5, 2020 in forum: Advocacy Projects and Campaigns
  9. Joh
    Post

    #MillionsMissing 2020 in Germany

    As the street protests had to be cancelled, #MillionsMissing Germany announced a new action today: postcards to the Health Minister. Quick...
    Post by: Joh, May 1, 2020 in forum: Advocacy Projects and Campaigns
  10. Joh
    Post

    Coronavirus - worldwide spread and control

    [MEDIA]
    Post by: Joh, Mar 15, 2020 in forum: Epidemics (including Covid-19, not Long Covid)
  11. Joh
    Post

    #MillionsMissing 2020 in Germany

    All actions are canceled due to Corona. It will be a virtual protest instead. [MEDIA]
    Post by: Joh, Mar 13, 2020 in forum: Advocacy Projects and Campaigns
  12. Joh
    Post

    Millions Missing events, 9th to 17th May 2020

    All actions are canceled. #MillionsMissing will be virtual because of COVID-19. [MEDIA]
    Post by: Joh, Mar 13, 2020 in forum: Advocacy Projects and Campaigns
  13. Joh
    Post

    Germany - parliamentary expert discussion on ME/CFS will take place in the Bundestag 5th March 2020

    Short TV report on the parliamentary expert discussion from a big public broadcaster:...
    Post by: Joh, Mar 11, 2020 in forum: Advocacy Projects and Campaigns
  14. Joh
    Post

    Germany - parliamentary expert discussion on ME/CFS will take place in the Bundestag 5th March 2020

    Summary from the German Association (from the Facebook Post) automatically translated: "First parliamentary expert discussion on ME/CFS in the...
    Post by: Joh, Mar 7, 2020 in forum: Advocacy Projects and Campaigns
  15. Joh
    Post

    Germany - parliamentary expert discussion on ME/CFS will take place in the Bundestag 5th March 2020

    These are the Facebook posts from the three organizers: MP Martina Stamm-Fibich, German Association for ME/CFS and #MillionsMissing Germany....
    Post by: Joh, Mar 7, 2020 in forum: Advocacy Projects and Campaigns
  16. Joh
    Post

    Germany - parliamentary expert discussion on ME/CFS will take place in the Bundestag 5th March 2020

    It's today! First article announced the discussion yesterday: Title: "Expert discussion on ME/CFS in the Bundestag Millions of people worldwide...
    Post by: Joh, Mar 5, 2020 in forum: Advocacy Projects and Campaigns
  17. Joh
    Post

    #MillionsMissing 2020 in Germany

    There will also be a #MillionsMissing action in Munich. :) [MEDIA] We are now at nine cities in Germany – three times more than in the last two...
    Post by: Joh, Mar 3, 2020 in forum: Advocacy Projects and Campaigns
  18. Joh
    Post

    #MillionsMissing 2020 in Germany

    There will also be an action in Berlin again. :) A (hopefully big) group of pwME and supporters will form the letters SOS in front of the German...
    Post by: Joh, Mar 2, 2020 in forum: Advocacy Projects and Campaigns
  19. Joh
    Post

    Fundraiser for Dr. Prusty's research

    An update was posted today by the patients that organized the fundraiser:
    Post by: Joh, Feb 29, 2020 in forum: Fundraising
  20. Joh
    Post

    Fundraiser for Dr. Prusty's research

    Now at 29.375 Euro. [MEDIA]
    Post by: Joh, Feb 29, 2020 in forum: Fundraising
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