[MEDIA]
#MillionsMissing Germany opened a Kudoboard to say thank you to the green party for the questions they put to the government and to call for...
This year #MillionsMissing global protests will take place between May 9th–17th. #MillionsMissing Germany announced the participating cities from...
Letter from the HHV-6 Foundation regarding the fundraiser: [MEDIA]
A group of patients started a fundraiser for Dr. Bhupesh Prusty's research at Würzburg University, Germany. There's no (zero Euro) funding for...
In my personal experience from being involved with several patient groups, it's often the severe patients who do a lot of the volunteer work from...
@debored13 I'm confused about your thread. Most of the ME activism is done by very sick volunteers. A lot of the ME organizations only consist of...
The IOM report (page 16) lists these three studies:
New video from #MEAction: #NotEnough4ME Dr. Koroshetz! [MEDIA]
I know, the name doesn't sound promising, but the meeting is actually on "chronic fatigue" and ME is one of the topics. Amongst others Drs...
I guess this is the report: https://www.s4me.info/threads/report-of-the-nandsc-working-group-for-me-cfs-research-now-online.11122/
Yes, there was a delay, it was written in 2017 and published in 2018. If you check out the URL, this version was published in June 2018. It was...
Thanks! :) Great summary – just two tiny points: 1. The guideline Müdigkeit was published in 2018 (not 2017). 2. Just to be sure, as it might not...
Thanks for your effort @Michiel Tack! Germany Guideline Tiredness (2018) – chapter on CFS:...
There was some media attention for the charity concert (this is a selection). Great short coverage on national tv:...
#MillionsMissing Germany is at the concert with an info booth. Donations go to a German ME patient (who is in her 30ies and worked in the music...
Screenshot from the livestream: [ATTACH]
Separate names with a comma.