Please tweet today (or in the next days) to the German health minister to support German pwME. You could copy this tweet: @jensspahn Forschung...
Part 1: [MEDIA] Part 2: [MEDIA]
A healthy volunteer in the study made several very short clips during his stay. [MEDIA] [MEDIA] [MEDIA] ... and many more. You can find them...
Couldn't find the full text either. But I guess it's good, Nicole Krüger is the founder of the German Lost Voices Foundation and does great work:...
Yep, I'm still confused by the claim that the Rituximab dose was halved (and this might be the reason the study had a negative result). Prof....
[MEDIA]
Thanks, I hadn't heard of this trial before! Reading this makes me desperate.
An amazing radio report on the statement of the German government about ME was broadcasted. It's only five minutes but mentions the world...
Ron Tompkins introduced the new website of the Harvard ME/CFS collaboration (online since yesterday): http://endmecfs.mgh.harvard.edu/
Yes. I still haven't made up my mind about this guy (like about many "ME experts") and it's hard for me to judge in the context of the early...
In the answer the governement says that the "Ärztekammern" are responsible. (Don't know the right English term for Ärztekammer – every state in...
True and it's really ridiculous that it keeps being mentioned by government and BPS proponents in Germany when it doesn't even exist. Although I...
Good idea and they have shared DT's fundraisers and signed the open letters and reported about his work. In general it's difficult that most info...
Here's an overview for the currant Guidelines in Germany Remember when there was the big petition in the UK b/c ME was supposed to become part...
Thanks for your interest! :) The situation is difficult. When I was in the Charité, they told me that Germany is 10 years behind the UK, but it...
The spokeswoman for health of the green party (who was involved in sending the questions to parliament) also published a statement today:...
[MEDIA] [MEDIA]
#MillionsMissing Germany published a new video today in honor of Severe ME Day. It features (among others) a severe pwME, Dr Bupesh Prusty from...
YouTube video by the14thmoonofuranus: [MEDIA]
The ME Show: Special Edition – Severe ME Week Edited to add: [MEDIA] [MEDIA]
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