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  1. Joh
    Post

    Use your Amazon Smile to fundraise while shopping

    In addition to Amazon Smile, there's also Gooding. Gooding works for over 1800 online-shops (many big ones like Deutsche Bahn, iTunes, online...
    Post by: Joh, Jul 15, 2019 in forum: Fundraising
  2. Joh
    Post

    WebMD updates "The Scoop on Chronic Fatigue Syndrome"

    Thank you! :)
    Post by: Joh, Jul 3, 2019 in forum: General Advocacy Discussions
  3. Joh
    Post

    #RCPsychIC hosting a panel on patient engagement with Rob Howard, Mental Elf and Simon Wessely

    From the Tweets of the Royal College of Psychiatrists About Wessely's talk: Then Prof. Howard is speaking about "confessions of a dementia...
    Post by: Joh, Jul 2, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
  4. Joh
    Post

    Harvard ME/CFS Collaboration Symposium June 8th 2019

    I'm currently listening to Dr Davis' talk. The nanoneedle has now been tested on 30 pwME and 30 healthy controls (at the time of publication it...
    Post by: Joh, Jul 2, 2019 in forum: General ME/CFS news
  5. Joh
    Post

    Harvard ME/CFS Collaboration Symposium June 8th 2019

    Youtube playlist of the talks: https://www.youtube.com/playlist?list=PLl4AfLZNZEQPNU0GYk3crnEnbQu_cYvO5
    Post by: Joh, Jul 2, 2019 in forum: General ME/CFS news
  6. Joh
    Post

    youtuber: Have you been misled...? // What is PACE? // Medical Scandal

    Jessica's channel is amazing. I started watching it after @Esther12 started this thread a year ago (thanks!). :) There are (among other...
    Post by: Joh, Jul 1, 2019 in forum: General ME/CFS news
  7. Joh
    Post

    ME/CFS conference in Hamburg, Germany, June 22 2019

    First pictures and a short summary. [MEDIA]
    Post by: Joh, Jun 30, 2019 in forum: ME/CFS research news
  8. Joh
    Post

    ME/CFS conference in Hamburg, Germany, June 22 2019

    Thank you! Will keep my eyes open regarding this topic. Best wishes to you and your family member with ME!
    Post by: Joh, Jun 24, 2019 in forum: ME/CFS research news
  9. Joh
    Post

    ME/CFS conference in Hamburg, Germany, June 22 2019

    From what I've heard so far from participants it went really well (I wasn't there as I'm homebound). It was fully booked and several doctors...
    Post by: Joh, Jun 24, 2019 in forum: ME/CFS research news
  10. Joh
    Post

    ME/CFS conference in Hamburg, Germany, June 22 2019

    I read the thread and I have no answer why this physician claims that it's a "standard treatment" for ME in Germany. My only explanation would be...
    Post by: Joh, Jun 24, 2019 in forum: ME/CFS research news
  11. Joh
    Post

    ME/CFS conference in Hamburg, Germany, June 22 2019

    I'm the last person to defend the German healthcare system when it comes to ME (or chronic tiredness syndrome, as it's called here) – it's...
    Post by: Joh, Jun 22, 2019 in forum: ME/CFS research news
  12. Joh
    Thread

    ME/CFS conference in Hamburg, Germany, June 22 2019

    A ME/CFS conference takes place in Hamburg, Germany today. It's organized by the German Association for ME/CFS (their first conference). The...
    Thread by: Joh, Jun 22, 2019, 14 replies, in forum: ME/CFS research news
  13. Joh
    Post

    Mike's EU Marathons

    :emoji_military_medal::emoji_runner: Thank you! Was looking for a superhero emoji, but couldn't find one. :)
    Post by: Joh, May 29, 2019 in forum: General ME/CFS news
  14. Joh
    Post

    Jen Brea: My ME is in remission

    Jen Brea is answering questions on Reddit: [MEDIA] Edit: Sorry this is so long, just posted the link :)
    Post by: Joh, May 20, 2019 in forum: General ME/CFS news
  15. Joh
    Post

    May 2019 - Awareness Week including Millions Missing

    @Andy has kindly already posted about this action. The fan club of Berlin football team Hertha BSC has shown its support for pwME in the...
    Post by: Joh, May 19, 2019 in forum: Advocacy Projects and Campaigns
  16. Joh
    Post

    May 2019 - Awareness Week including Millions Missing

    This is amazing! I shared with the other volunteers and everyone though this is funny. Thanks for educating the German public, please consider...
    Post by: Joh, May 15, 2019 in forum: Advocacy Projects and Campaigns
  17. Joh
    Post

    May 2019 - Awareness Week including Millions Missing

    Pictures from Berlin, Munich and Halle in Germany (more are being uploaded): https://meaction.smugmug.com/MillionsMissing-2019/Europe/Germany A...
    Post by: Joh, May 15, 2019 in forum: Advocacy Projects and Campaigns
  18. Joh
    Post

    May 2019 - Awareness Week including Millions Missing

    Germany The three #MillionsMissing visibility actions in Germany – in Berlin, Munich and Halle – were amazing. :) During the last week we had...
    Post by: Joh, May 13, 2019 in forum: Advocacy Projects and Campaigns
  19. Joh
    Post

    MillionsMissing Germany needs followers on Youtube

    We made it. Thank you! :) [ATTACH]
    Post by: Joh, May 4, 2019 in forum: Advocacy Action Alerts
  20. Joh
    Post

    MillionsMissing Germany needs followers on Youtube

    #MillionsMissing Germany now has 749 subscribers, nearly there! :) We are very grateful for your support, so that volunteers can livestream via...
    Post by: Joh, May 2, 2019 in forum: Advocacy Action Alerts
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