Worth noting is that the first author’s affiliation is King’s Healthcare Partners, which run a CFS clinic that is part of the NHS’ South London...
I only ever met one person who had rheumatoid arthritis, an English woman who had moved to France with her family because she found better...
They know what they are doing — the second author of the article, Dr Barbara Dworetzsky, was a signatory of White’s paper about the...
Yes, but Visser and van den Campen have shown that many people with a ME/CFS diagnosis have orthostatic intolerance without heart rate or blood...
Summary thread on X / Twitter by one of the authors: [MEDIA] Interestingly, after separating the patients into groups based on a proteomics...
POTS.
This initiative is commendable especially given the recent cases of people with very severe ME being mistreated in the hospital. However, this...
It is disappointing that sports medicine is only interested in touting its own horn instead of understanding post-exertional malaise and its...
Yes, I had a gastric emptying scintigraphy done last year to diagnose my gastroparesis. The images are all taken while standing up and this is a...
The gold standard examination for diagnosing gastroparesis is the gastric emptying scintigraphy (GES), where pictures of the stomach while...
Thank you - I’ll ask my GP when I see him on Friday.
The paywall has since been removed, presumably because the study was funded by the NIH (at least in part). Tachycardia after eating is a major...
I should also note that when I crash from eating too much, my stomach is particularly impacted. It feels like a heavy brick and digestion becomes...
I hadn’t been made aware of this so I don’t know if this editor’s note came about based off of my reanalysis or someone else’s report, but I’m...
I have just had a surgical intervention for my gastroparesis named G-POEM (gastric per oral endoscopic myotomy), which consists in cutting off a...
Some people may prefer homeopathic or other folk remedies, but why should preference matter if a treatment is not effective to begin with?
As a note, I have skimmed through Jeannette Burmeister’s blog post but it does not seem to be addressing in depth the methodological concerns as...
I have been out of the loop for a while so I have not read (and am not currently able to) the two long threads on the forums about the NIH study...
The interesting takeaway for me is that this is evidence that contradicts the argument from the opponents to the NICE guideline that GET can be...
#MEAction have released their analysis of the study: https://www.meaction.net/2024/02/29/meaction-nih-study-response/
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