Yes I will get vaccinated at a vaccination centre somewhere else I believe ... the gp will just be my booking agent :) good luck
I rang up earlier this week in my area (Cambridgeshire) since a work colleague had rang on Monday and been booked for a jab on Friday despite not...
I think changing ME, epilepsy or whatever to a different definition won’t make them less stigmatised. This seems to miss the point. Calling it a...
My personal view on this is that we need to see some significant prevalence studies on “toxins”. Until then there will always be conspiracy...
I have a Fitbit and have noticed the same variability in heart rate although on a different scale. In fact I can reasonably predict my ME symptom...
surely an incentive payment and screening questionnaire is not beyond the capabilities of OMF. (Commonplace for any cohort selection)? this is...
I think this is quite important. For me I really struggled to find any help on how to manage the fluctuating nature of ME at work. Having...
Just thought I would pop in and thank everyone for their comments. I’m still digesting but having so many experiences already has been really...
I can only speak for my employer but I would say it’s split. Some members of the board believe adopting a blended approach post lockdown is the...
Yes it’s got quite a bit on general prevalence. The thing I found frustrating is it doesn’t really help on employment issues ...it’s more about...
I’ll start by posting the draft nice guidelines https://www.nice.org.uk/guidance/gid-ng10091/documents/draft-guideline#page37 this has a...
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Hi I’m currently negotiating with my employer and formalising reasonable adjustments. I’ve taken a look at threads here and not surprisingly...
I thought they had ditched that idea since they found the blood needed a lab to prepare the sample before it could be tested? This would make...
Just an n=1 anecdote but I had my cortisol tested to eliminate Addisons during diagnosis and my cortisol profile morning midday and late afternoon...
I’m not sure I want to waste my limited cognitive energy reading this so I will make a small comment about this. even marketeers know ;) that...
Mrs sloth says that she spots me looking pale and grey as an indicator of a downturn. However she also says I go flushed beetroot red also...
This is what is in the MEA fact sheet “M.E. is classified by the World Health Organisation (WHO) as a neurological disease. The WHO...
I see this logic completely. I personally think there isn’t much evidence to put ME in a neurological classification either. But that is not the...
Just a follow up..I’ve looked at the MS and epilepsy charities (both included in the JVCI report) and they are saying that in the main the...
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