She is tweeting again [MEDIA]
i had a friend (U.K.) with severe ME who was peg fed, then TPN and I am also pretty sure she had to be lying flat. So it feels like it can happen...
@ukxmrv, may I ask when you wrote above ‘Buying onto their belief it is a medical’, is ‘their’ referring to Maeve and is the dietitian claiming...
Good points @SNT Gatchaman, thanks for your thoughts.
Great piece, makes a change! Thank you to Merryn’s mum and Maeve’s father for sharing their stories and to channel 4. One thing I think the...
Agree latest BBC article is poor. Description of ME pathetic. NHS website on ME still bad. “ME is a long-term condition with a wide range of...
Were Fauci’s comments in an article I read in December some kind of admission: “Fauci said, however, that he and other infectious disease...
Is anyone concerned that Fauci says in laying out a road map for how to approach ME/CFS, ‘first, stick with only post-COVID patients; do not...
In Hilary’s Johnson’s tweets of Nath’s presentation she says ‘“Kaplan thanks him for "long overdue" work. Kaplan: only 40 % noted worsening of...
Thank you. What threw me were the words ‘not ready’ as I felt it could imply it would be eventually.
In the article, Shure writes - “Jennifer Brea insists that FND is “not a diagnosis that is ready for prime time.” What does this even mean?
It’s so depressing seeing the same old nonsense but damaging arguments being used in articles about LC - and in this article ME too - that people...
Awful article in the New Republic claiming there is a debate to be had whether ME and now Long covid should be treated using a psycho social...
@rvallee, so true. All v 1984. @bobbler, I agree with all the points you made in your comment. Anti lockdown at any stage, anti masks and general...
The lead author of this study is saying in articles about this study that as the study shows that people are ill after a virus or other infections...
Apparently Cheney changed his thinking on oxygen treatment for ME....
All good points but I did feel Systrom saying at the end there are medications available which then allows the person to exercise as, as Jonathan...
Thanks Ravn. I agree with your points.
Thank you. So do you think Systrom possibly over estimates the helpfulness of the medication he refers to in the NYT article? If I read that...
The article also has the below paragraph Does anyone know what ‘adequate treatment and medication’ David Systrom may be referring to in the...
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