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  1. Liv aka Mrs Sowester
    Post

    Blood clotting disorders and ME

    Based on my experience of a brief period of sticky blood at my OI onset I think the sticky blood/high haemoglobin problems that many of us get are...
    Post by: Liv aka Mrs Sowester, Feb 8, 2018 in forum: Other treatments
  2. Liv aka Mrs Sowester
    Post

    Call to Action: Westminster Hall (UK) (parliamentary) debate: PACE trial and its effect on people with ME - Carol Monaghan February 20

    In which case I'd assume people being refused benefits or sick pay or reasonable adaptations in the workplace due to the mistaken assertion that...
    Post by: Liv aka Mrs Sowester, Feb 7, 2018 in forum: Psychosomatic news - ME/CFS and Long Covid
  3. Liv aka Mrs Sowester
    Post

    Call to Action: Westminster Hall (UK) (parliamentary) debate: PACE trial and its effect on people with ME - Carol Monaghan February 20

    I believe she has been in contact with our leading charities and advocates and we can trust them to be giving her all the relevant papers and...
    Post by: Liv aka Mrs Sowester, Feb 7, 2018 in forum: Psychosomatic news - ME/CFS and Long Covid
  4. Liv aka Mrs Sowester
    Post

    Call to Action: Westminster Hall (UK) (parliamentary) debate: PACE trial and its effect on people with ME - Carol Monaghan February 20

    Yes, I do but I'm off duty modwise so I'll tag @Dolphin or @TiredSam Would you consider adding 'Call to Action' or similar at the beginning of...
    Post by: Liv aka Mrs Sowester, Feb 7, 2018 in forum: Psychosomatic news - ME/CFS and Long Covid
  5. Liv aka Mrs Sowester
    Post

    Call to Action: Westminster Hall (UK) (parliamentary) debate: PACE trial and its effect on people with ME - Carol Monaghan February 20

    I would think personal accounts of inappropriate or negligent care and advice stemming from the results of the PACE trial would be useful. I would...
    Post by: Liv aka Mrs Sowester, Feb 7, 2018 in forum: Psychosomatic news - ME/CFS and Long Covid
  6. Liv aka Mrs Sowester
    Post

    Call to Action: Westminster Hall (UK) (parliamentary) debate: PACE trial and its effect on people with ME - Carol Monaghan February 20

    [MEDIA]
    Post by: Liv aka Mrs Sowester, Feb 7, 2018 in forum: Psychosomatic news - ME/CFS and Long Covid
  7. Liv aka Mrs Sowester
    Post

    Call to Action: Westminster Hall (UK) (parliamentary) debate: PACE trial and its effect on people with ME - Carol Monaghan February 20

    The debate is tabled as - The PACE trial and its impact on people with ME [MEDIA]
    Post by: Liv aka Mrs Sowester, Feb 7, 2018 in forum: Psychosomatic news - ME/CFS and Long Covid
  8. Liv aka Mrs Sowester
    Post

    Call to Action: Westminster Hall (UK) (parliamentary) debate: PACE trial and its effect on people with ME - Carol Monaghan February 20

    Carol Monaghan is requesting comments on PACE be emailed to carol.monaghan.mp@parliament.uk
    Post by: Liv aka Mrs Sowester, Feb 7, 2018 in forum: Psychosomatic news - ME/CFS and Long Covid
  9. Liv aka Mrs Sowester
    Post

    Rethinking the treatment of chronic fatigue syndrome—A reanalysis and evaluation of findings from a recent major trial of graded exercise and CBT

    Eeeew, sounds itchy!
    Post by: Liv aka Mrs Sowester, Feb 6, 2018 in forum: Psychosomatic research - ME/CFS and Long Covid
  10. Liv aka Mrs Sowester
    Post

    Protest song about ME & Angel on the Water

    Hi @Robert 1973 sorry I missed your request for warblers, I'll have a go at a line if you still need volunteers. I do love a good sing song.
    Post by: Liv aka Mrs Sowester, Feb 6, 2018 in forum: Advocacy Projects and Campaigns
  11. Liv aka Mrs Sowester
    Post

    THE CHRONIC ELEPHANT BLOG-DYSAUTONOMIA PART ONE

    Best title ever! I've subscribed for email notifications @hellytheelephant
    Post by: Liv aka Mrs Sowester, Feb 4, 2018 in forum: General and other signs and symptoms
  12. Liv aka Mrs Sowester
    Post

    Mattresses - What’s working for you?

    Was the shop owned by three bears?
    Post by: Liv aka Mrs Sowester, Feb 3, 2018 in forum: Home adaptations, mobility and personal care
  13. Liv aka Mrs Sowester
    Post

    Low oxygen SPO2 anyone?

    I've been taking my O2 every half hour today; it's ranged between 91 and (for an exciting 5mins) 99. But it's averaging 95. The lows are...
    Post by: Liv aka Mrs Sowester, Feb 3, 2018 in forum: Cardiovascular and exercise physiology (CPET)
  14. Liv aka Mrs Sowester
    Post

    A comparison of UK and German healthcare provision

    They are threatened with huge cuts or abolition of the license fee if they misbehave.
    Post by: Liv aka Mrs Sowester, Feb 3, 2018 in forum: Other health news and research
  15. Liv aka Mrs Sowester
    Post

    Mattresses - What’s working for you?

    Welcome to the forum :) Interesting topic. I'm happy with a basic traditional sprung medium to firm mattress. But have to avoid memory foam at all...
    Post by: Liv aka Mrs Sowester, Feb 3, 2018 in forum: Home adaptations, mobility and personal care
  16. Liv aka Mrs Sowester
    Post

    What's in a name? Change to Ramsays?

    I expect that when we finally find out what is driving our illness a suitable name will present itself. In the meantime it's just a minefield -...
    Post by: Liv aka Mrs Sowester, Feb 2, 2018 in forum: Advocacy Projects and Campaigns
  17. Liv aka Mrs Sowester
    Post

    Lancet Infectious Diseases: Editorial, "A proper place for retraction", 2017, mentions PACE in passing

    This. A review of all the participants undertaken by a team of independent researchers is the only ethical way I can see of overturning PACE.
    Post by: Liv aka Mrs Sowester, Feb 1, 2018 in forum: General ME/CFS news
  18. Liv aka Mrs Sowester
    Post

    Parents trying to cure autism by giving children MMS/bleach, article, investigation, petition

    @Wonko - it's this sort of Wonko post that convinces me we need you in the moderation team.
    Post by: Liv aka Mrs Sowester, Feb 1, 2018 in forum: Other health news and research
  19. Liv aka Mrs Sowester
    Post

    PIP claimants - email your experiences of the process to Laura Pidcock MP before Westminster debate next Wednesday

    https://www.theguardian.com/commentisfree/2018/feb/01/spy-on-your-neighbour-britain-demonisation-benefit-claimants-disabled-people This is a very...
    Post by: Liv aka Mrs Sowester, Feb 1, 2018 in forum: Advocacy Action Alerts
  20. Liv aka Mrs Sowester
    Post

    Nature: A reboot for chronic fatigue syndrome research

    Amy is very welcome to lurk. Amy, if you'd like to join in with the discussion we'd be delighted.
    Post by: Liv aka Mrs Sowester, Jan 31, 2018 in forum: General ME/CFS news
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