Do we know what the male to female ratio is in our membership here at S4ME?
Visual disturbances were amongst my earliest symptoms. I assume they are connected to OI and lack of oxygen?
It would help matters if someone actually wrote the definitive guide to GET. These 'does GET actually work' conversations will never get anywhere...
Yes, this is my experience too. I have a penpal who claims GET has helped her go from bedridden to wheelchair bound, but I know she was actually...
I did. The psych who helped me at the Cornwall clinic was fantastic, she helped me cope with a difficult family member who was stressing me out to...
This was my experience at the Cornwall Clinic - they taught me pacing and said never to push through symptoms. I was told they couldn't make me...
I developed sensitivities (skin, food, meds) at puberty which continued and worsened gradually until my OI onset in 2010 at which point they...
ME is a disabling condition, so I describe myself as disabled. I described myself as ill until I faced the fact I hadn't been able to leave my...
In other words having a fatiguing illness that isn't ME.
I assume the list hasn't been updated recently enough, but here is the thread where the stakeholder meeting is being discussed:...
Yes, @Jonathan Edwards is our rep.
Absolutely bang on @Luther Blissett. It is extremely worrying how many children of abusive parents go on to seek positions of authority over...
Well that slip is most certainly telling. (My bold)
I found that article quite beautiful, I'm going to drop a link in the peace and acceptance thread.
We aren't on their Patient Support page yet. But the site is much better, the banner doesn't obscure most of the screen anymore.
Poor Wessely, it was all a misunderstanding; he was young, he believed what he was taught about the perils of labelling and he was misquoted by a...
The most evident and consistent symptom of my PEM is swollen lymph nodes in my neck 36 to 48hours after exertion.
https://jcoynester.wordpress.com/2018/01/07/a-sudden-reversal-of-fortune-for-the-biopsychosocial-model-of-illness/ James Coyne's blog is featuring...
Because the question of how to accept ME and find peace with it has come up in a couple of threads I've started a new one:...
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