If the kids come up with any definition of recovery other than 'being able to do the same as my healthy friends can' then they've been manipulated.
Hi @MVH welcome to S4ME, absolutely delighted to have you join. I've got my fingers crossed you post some of your photographs here :)
You can watch the video by clicking on the 'Watch on Vimeo' button.
@Lilpink's thread posted on behalf of an anonymous researcher/advocate is relevant here...
In theory anyone can do a TEDx talk. Someone with ME could dare to disrupt the outdated BPS model of ME and its influence on current treatments.
Great article. Healthy people I know are sharing it which is brilliant. Just to add to Andy's request - please invite him to join us here Twitterers.
And that is just one family that we know about, there will be more too frightened to even tell friends for fear of care proceedings.
I really hope she falls quickly because her influence to date has been malignant.
It really troubles me that she still runs a clinic for children with ME and has way too much control over them and their families. There was a...
I'd keep it really simple and send it to TEDx Bristol and Bristol Uni; 'I am a child with ME/person with ME. Esther Crawley does not speak for me...
Textbook.
I'm thinking a campaign around the idea that 'Esther Crawley doesn't speak for ME' might be a good and simple one that could gain traction.
I love the Dorothy Bishop quote that is textbook damning with faint praise.
I completely sympathise @Luther Blissett - I had to turn like notifications off because foggy brained me kept missing alerts I needed to respond...
To be fair I'd imagine aluminium isn't the only toxicity people with renal failure are susceptible to.
Nerve pain, I have a lot of that. Can you add nerve pain please @Sly Saint?
Excellent job @Valentijn
Can we copy or screenshot our comments to here please? A permanent record will be handy as comments on the site are being deleted. It would also...
Daft question, but do all heart rate monitors have the metal contacts? Metal gives me hives :(
Such an amazing start! Well done everyone, you should all be very, very proud :emoji_trophy:
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