I totally agree. Doctors are actually trained to view people with list as hypochondriacs. The only thing I repeat with every consult, is that I...
That is sometimes the feeling I get, that this disease is still not "legitimate" enough to even think about giving any medication. That is...
I think it's difficult to see what's going on because of that dichotomy. On the on hand, the medical world falling for these kind of ridiculous...
So, that pretty much makes everyone a fringe-doctor? I really would like to know what kind of evidence you have for it not producing drastic...
I have tried to find the article again, but I can not find it. It was definitly not some fringe doctor, but an established professor at one of the...
My records don't say anything I think. I lost trust in the system, went to a private doctor and never discuss my ME with my GP anymore. They have...
Wow, your last sentence is so true... Is there no worry? I think, if there is, the medical community caused it. In the 50's the advise with acute...
Which doses are you talking about? I just want to ask, because I see low dose cortisol being described as somewhere between 5-35mg, where 5mg is...
Thanks! This is from yesterday, I hadn’t read it yet. More people thinking along the same line, that’s really cool!
Forgot to attach a link: The three clinical trials are mentioned on the me-pedia cortisol page. https://me-pedia.org/wiki/Cortisol
I have been reading a bit into the three cortisol studies that have been done in the 90’s. I would like to discuss the ideas that come out of a...
I am extremely happy with this paper. I really like the comparison with the acute phase and chronic phase of ICU patients. I think in this group...
This post has been copied and following posts moved from this thread:...
Guido, can you tell me what you think is the best description of true ME? Moderator note: This post has been copied and following posts moved to...
Wow Trish! I was pretty happy with this paper, but you have made some excellent points! At the moment I am mild and experience very little PEM,...
Ha, you are right, It's just "a" lyme treatment. I have decided to follow one intensive protocol, I don't want to get stuck in a crazy...
I agree that there should be more testing, but I have seen data from tests with healthy control groups. How exactly is it invalid? I don't see how...
i didn’t know the rules were this strict in Norway! I have the same thing, I have no problems trying things out. Yes, it has a risk, but until now...
I think this paper is a good start. To be honest, I have lived with this for years and even I have a hard time making sense of my symptoms and...
Thank you for your blog!
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