Yes, I agree, when in PEM, all muscles are affected. For me this does feel like a flu-like state which Jonathan Edwards describes. Full body...
I do agree with this as a possibilty, but there is one thing that also doesn’t correspond with this: the peripheral effects on the muscles that...
Aaaaargggg:banghead::banghead::banghead: Just ignore all the research on physical causes of IBS. Ignore the fact that you can actually get rid of...
There is a second link for today!
Biking with one leg, I think? If the problem is in the vascular system in the muscles, I can imagine it’s interesting to compare the active muscle...
It was very interesting, am looking forward to tomorrow! I really liked the guy who was responding to David Systrom, who was not familiar with...
Same here. Although it's hard to say, as I've never had much stress, I'm a pretty laid back person with an easy life (except for this illness;))....
I don't have relapse/remit. I was just slowly getting worse and now slowly getting better. First four years I wouldn't have even said I was ill,...
Yes, I had very low C3 and C4.
I have always felt that it seems more like a parasympathetic problem, there is something wrong with the rest phase. Normal resting doesn't work...
I’ve read the blog. It almost has nothing personal in it, it reads like a advertisment... I also feel it has a lot of inconsistency, he...
I think this is very interesting to think about. I also hope that the problems of the BPS model as a whole come to light and not only for ME. We...
He has been tested for bacterial infection (salmonella etc) and parasites. I screened him with lists of scientic reviews for donor’s. There are...
I’m doing a ten day fecal transplant right now:) It’s pretty easy to do diy and very cheap as well.
Interesting! I hardly get uti’s anymore, but when my ME started I had about 20 uti’s in one year. Luckily, the tests came back possitive mostly...
Even if it wouldn’t get worse in the long run, isn’t it just normal coping to not want to feel like absolute crap all the time:banghead: I hate...
I have declined a fibromyalgia diagnosis very often:laugh: I have the feeling it's pretty much the same kind of diagnosis CFS or IBS is: a waste...
I totally agree. There was a program on MUS (called SOLK in the Netherlands) on the television here. It was about an inpatient SOLK clinic, it...
I have had a lot of changes over the years, I've read somewhere that there is a lot of experience that the illness changes a lot and is different...
It may be different with different people (maybe only different severity levels or maybe people have different diseases), but I really feel that...
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