Coroner 'I am intending to write a Section 28 report to Trust/Dept Health? plus NICE plus other bodies' Not sure if I heard this right. She...
Matron for Patient Safety (Hospital role). Never heard if this before They also seem to be putting emphasis on Dr Strain 'having an interest in...
I was going to comment on the other thread but probably better here. My experience is with 3 viral illnesses (teenager, early 20s and Covid) has...
I'd be worried about all that heat for anyone who developed POTs or heart issues after Covid.
Cyclizine was the drug that helped me most with nausea from Chemotherapy and I still use it for my normal ME morning nausea now. Covid made my BP...
It was discussed on the ME groups at the time and some patients even went to see him when he was still in Italy. Personally I did find it...
I have a folding stool that I take with me if not using a wheelchair. It's painful for me to sit using one for long periods of time. I also have...
When I was having chemo I was told that there was no where I could lie down. The chemo ward consisted of reclining chairs but I was too weak to...
I wonder what happened to him. On a previous Internet forum a patient went to see him I remember.
I am sensitive to noise, smells, heat, visual stimulation but these don't cause the same PEM that physical exercise does in the same way. As an...
Imagine if we could charge royalties for inventing and testing 'pacing'. At the very least people with ME should be credited somewhere? All the...
I get repeat viral symptoms for no apparent reason. The first 'warning sign" is that I start feel a little better out of the blue. I can think...
Report on two deaths from the AZ vaccine. https://www.bbc.com/news/articles/cx2g921rd2lo Interesting timeline. I tried previously to put...
It's not going to be the same for everyone but the symptoms I had from the vaccine were completely different to when I got the virus. I also...
I started a personal injury claim using my house hold insurance. The problem was not finding a lawyer as the funding was in place. It was finding...
It could come down to having an expert witness. When I looked at this previously it was the lack of a NHS doctor willing to get involved in legal...
It depends of the Coroner has to consider the Equality Act. She made reference to the Human Rights Act Article 2 Right to Life but decided it...
I was thinking on the inability of the NHS to allow for ME 'disability' in access to treatment. It's obvious from my own recent dealings that no...
Very distressing at the Inquest now. Mrs Boothby very upset. Trying to question witness on why she wasn't helped when she asked for help from the...
There was also Burrswood Hospital but that was not NHS and stopped admiting people with ME. I don't know if Dr Worthley or Dr Findlay ever had...
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