Robert, is it possible to have this released in any other format? The MEACTION website is impossible for me to read because of the way in which...
Thanks Gary, Quite understand. You are doing a fantastic job and given that you have ME yourself, ever more fantastic. Thank you. Hope that you...
Thank you Gary for doing an incredible job. Being diagnosed with ME means a very sharp learning curve and I'm sure people here appreciate that....
But even putting the best possible slant on what she did say - was it actually true. Who are these funders who decided to put their money into...
I've been sending them text messages but nothing mentioned. They don't even seem to be trying to answer the question Gary raised and how got...
Annie (the patient who phoned in) was the first useful voice. Prof Newton touched on some important points but could have done better. She blamed...
It was a mixed bag. They didn't even try to answer the question they posed. Julia Newton in turns frustrating and then useful. I don't think any...
I remember this very well. Dr Madan went to the APPG on ME and it was discussed there. Dr Shepherd tried to work with them to get it changed....
Sorry I forgot that not every one would know this. I get stuck times.
I've been using the MERGE one for many years
With Dr Bansal retiring that leaves very few doctors in the NHS left that could be of use to patients. I'm not sure how Dr Weir would feel about...
They pay your expenses to come to meetings if you are accepted on to the committee. I do know of lay members getting other incidental expenses...
I don't know if it is the same in the USA but last time we had a Judicial Review into the NICE guideline. Was at the court and great support from...
I thought Vance Spence made some really good points. He's a doctor and hasn't worked for 30 years due to the disease. That would have a good point...
MP - the PACE trial need to be exposed. The patients are so exhausted, in pain, crippled with ME we just don't see them. Missing millions mentioned
Patient (Emma ) asked what her day is like - make choices, wash hair/talk to friends. Every day choice of small activities. Large activities in...
MP talks about treatment centers in England. Doesn't seem to understand that these are largely harmful The results of this trial is felt around...
Vance Spence - Feels like a "Hamster on a wheel" CMO report on ME "mike Armstrong" 12 principle recommendations and not one acted on why -...
PACE finally mentioned by name in statement by Govt Also says NICE guideline is being looked at MP says she hopes exercise will be removed from...
MP now being interviewed Long term impact of trial (PACE but the name not mentioned yet) People are still being encouraged to exercise and this is...
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