What happened when you followed treatment in this trial - became housebound, wheelchair My consultant told me that I should have tried harder...
Patient being interviewed (Emma Shorter?). Larger housebound and without research facing rest of life Diagnosed quite quickly. Had virus and never...
I'm listening now. Brief notes Controversial treatment debated in parliament next week Patients say it makes me them feel more unwell £5 million...
For me Cyclizine was made the difference (and I used it with a cocktail of other nausea drugs) Roughly this was the group of different drugs I...
I had a trial of Heparin once over 3 months (twice) with injections once a week and a break in-between. It wasn't for anything ME related. Sadly...
Thanks for the post Milo and for doing such an important job. Having had chemo for breast cancer I have nothing but admiration for the nurses. My...
Does it really or do PWME use more "something" to support larger muscles than they need for what they can do? I didn't find it less tiring to do...
There was this old paper by Reeves et al, However this is the infamous Wichita cohort. https://www.ncbi.nlm.nih.gov/pubmed/16740143
I'm not sure if Professor Brostoff is still interested in ME issues but he could be another possibility maybe?
The petition and publicity seem to be trying to tackle trolls who attack individual disabled people. Yes, that is bad and many of us would have...
This looks like "PEM" as a Lifestyle problem. How can food as an example cause PEM in a sizable group of well defined patients? The examples are...
I'd like to see a study on Celebrex alone to see what effect it has and another group taking the combo to compare exactly where the differences...
Last time NICE sent out a message inviting patients to apply for the 3 patient rep positions. There was a form from memory to fill in.
She could maybe ask the Duchess of Kent what it was like being mis-diagnosed with ME when she had coeliacs disease Reports by the BBC stated that...
"Dr Groves decried the "awful behaviour” – in this she referred to a couple of attendees in the audience (severely affected ME patients) who...
Patients who attended the National Hospital in London and then reported back to their support groups knew. From my memory of the time the Ean...
They think that the end justifies the means. Their colleagues cannot possibly be harming patients. All those poor children with no champions. It...
Hence the very old saying about him 'weasel words'
I have a dim memory that the VP1 test was abandoned in part when the MEA collected results from their members and based on the low positive...
P.s. Just. I also had an unexpected good result to the test. Normally my morning symptoms are nausea/vomiting, weakness, fainting but within a...
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