Hi Erin. My experience was that the test went well and I had no bad effects apart from the awful post exertional problems of attending a...
I'm not entirely convinced that anyone recovers from using the LP from anything. There is another complication. A family member did a similar...
This strikes a chord with me as I see Prof David Peters has his ex-job as a GP in the Marylebone Health Centre mentioned in his blurb. This is a...
I was going to suggest that as many patient reps as possible meet up before the meeting or set up a closed email group to discuss the workshop....
It seems to have been recorded before the sad announcement about the Rituximab study
It's more than that - it's the whole politics about having child with down's syndrome
Yes he is and slow enough for me to understand him his time!
<snip from email regarding workshop> If someone from your organisation would like to attend, please register by 15 December 2017 by completing...
Oh - I missed out. Says all sold now
Mattie, I'm not sure what it is like where you are but both my GP and the endocrinologist I eventually saw were scathing about private cortisol...
The cut off date for this workshop is the 15th of December. You have probably already done this but maybe let them know you intend to send a...
Any group has to fit their definition of a stakeholder to register " National organisations for people who use health and social care services,...
I've heard that NICE have sent invites out to Stakeholder groups for a "Guideline stakeholder engagement workshop" to be held in January 2018....
Probably because she co-wrote a book with him. Dr Simpson came from NZ and did some talks to local UK ME groups (in the 90's from memory). He...
I think this may be from 2013. Seen it before somewhere else maybe?
very high temperatures with sweating / delirious - first 15 years or so.
I think from memory that AFME writes these minutes and there can be a battle from different sides trying to control the contents as it's felt AFME...
When we do this we fall into a trap of their making Whenever we address "their" argument we further feed the stereotype of a dangerous,...
I'd not go for a blood test but maybe something else like a Tilt Table Test for POTS if he has any signs of dizziness or fainting that could be...
That was certainly the fear UK Labour minister's had when they were in power. I had the opportunity to question 2 separate ones about their use of...
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