Suspect her views re Cochrane are not so much about ME/CFS but shaped by other events - both the mask review and other events such as this:...
Might be "anankastic personalities" - couldn't hear that well though
From 00:31:23: I can't immediately identify the speaker, however according to the published list of members there was only one psychiatrist on...
MEA news: https://meassociation.org.uk/2025/01/bmj-outcry-over-cochrane-decision-to-abandon-review-of-exercise-therapy/ Links directly to the...
"Six things you’d like to see in the Delivery Plan for ME - Sharing feedback from our readers about their priorities for the Delivery Plan":...
I don't agree with that statement either. On the extent of placebo response the evidence seems rather mixed - there are actually a few obscure...
ME Action posted another update - Bluesky post: which links to this blog entry:...
Think the important-effect comment was from this PDF of FOI'd correspondence:
Background: Long COVID and myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) disproportionately affect females, suggesting modulation by...
BMJ article - "Chronic fatigue syndrome: Outcry over Cochrane decision to abandon review of exercise therapy":...
AfME doesn't have a particularly high level of trust in the UK ME patient community. It seems they have improved quite a lot of late but on the...
Just to note that Hilda has made a few additional remarks in this Bluesky thread; there is also some discussion of context & background, including...
https://donate.ed.ac.uk/support/ME-CFSResearch
Someone asked (on another thread which I can't find now) about the citations all the different versions have accumulated, so I used Web of Science...
Well, good for Hilda. I rather expected her to simply turn away, as so many others have done over the years. Given Cochrane's leadership is...
Interesting opinion piece in the BMJ (open access) encouraging patient engagement in research & addressing some sceptics' common arguments:...
They do mention a test set:
"Biopsychosocial" is one of those Janus-faced words, like "functional", but Engel's vision always was a fully psychosomatic one. A freely...
I wonder how many pwME experience the "tired but wired" phenomenon? Again, one of these things I've not really experienced. I don't think we've...
The Current and Future Burden of Long COVID in the United States (U.S.) Background Long COVID, which affects an estimated 44.69-48.04 million...
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