[ Originally deleted this post because I was going to add some explanation & additional references, but reposting ] Wiskott-Aldrich -...
Looking for any reference at all to VH3-30 (or its synonyms) in the Long COVID literature, I came across this curiosity from the recent Annesley...
We also discussed typing patterns & other potential metrics on this thread a while ago:...
Now published: see here Abstract: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a common and debilitating chronic illness of...
"Single-cell transcriptomics of the immune system in ME/CFS at baseline and following symptom provocation" Also related & of interest was...
As for donations to research - until recent years, I didn't have a good idea of who to donate to myself; almost all the research that I had looked...
Perhaps another solution would be to offer long-term or lifetime memberships for an initial membership fee with reduced fees for those on benefits...
Some good ideas but frankly the last thing we need is the UK equivalent of a "Cohen Center for Recovery from Complex Chronic Illness". And I...
Abstract: Post-COVID syndrome (PCS) has emerged as a significant health concern with persisting symptoms. A subset of PCS patients develops severe...
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This is how PEM was assessed: And ME/CFS was defined as:
For the one (rs2049045) that you couldn't find an association with either BMI or obesity - "Association of the BDNF Val66Met variation with...
Haven't spent a lot of time on this but, yes, none of the SNPs appear in the supplementary data table from Howard et al...
What happens on S4ME really has no parallel. I'm sure that surprises many - isn't academia where knowledge is formed, where ideas are debated and...
I commented a little while ago on some of the free resources the MEA is putting out: does anyone know whether the "Purple Book", intended for &...
Thanks for those - just finished reading through, & they were very illuminating. I had no idea of all this history. I think I have a far better...
Now published in Molecular Therapy: Link | PDF (open access)
What happened back in 2003, anyway? I don't wish to re-open old wounds, but genuinely curious: I've read the story in the BMJ (BMJ 2003;326:1232)...
If they genuinely do consult widely about, and get high-quality professional advice on governance that would be welcome, as they have got...
Not quite sure where to put this, but here seems like a good spot, as it would seem to have implications for ME/CFS in the paediatric context in...
Separate names with a comma.
