Ahh, an overbroad conception of "central sensitisation" again. It's not completely implausible that CGRP might play a role but a variety of...
There have been quack surgeons selling placebo surgeries for a very long time, since at least the time of William Arbuthnot Lane, but preying on...
Abstract: Major depressive disorder (MDD) and myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) frequently occur together; yet their...
Some clinics' information sheets do include links to AfME/MEA, but I think these attitudes are still out there. In 2020, in their response to the...
On the subject of donations: ME/CFS tends to strike sufferers when they are younger, and there is a strong female predominance. By contrast...
Many NHS clinics will not point people to the charities as they do not share the same model of the illness, whereas I suspect newly diagnosed pwMS...
The 5,000 figure comes from the annual accounts / reports:...
That's a good example, actually; here's the model: [ATTACH] I haven't paid a lot of attention to modern BPS works but in the early papers a lot...
George Monbiot's excellent article ("‘You don’t want to get better’: the outdated treatment of ME/CFS patients is a national scandal", in the...
Agree that "[hyper]sensitivities" can have an unwanted emotional connotation. In the world of autism they're often called "sensory processing...
DeepL translation:
Should definitely take our time at first. It might be useful if writing groups could have input from people at all levels of severity & those...
Also in the last 10 years - some data essentially in support of the effect, the 2017 IMPACT trial and associated commentary in Lancet Psychiatry:...
Very few recent publications, I think. A more recent (2019) critique - this systematic review: "The misleading Dodo Bird verdict. How much of the...
Great to see some of the ideas springing up on this thread. Something else that's worth a mention is that research is usually informed by...
It doesn't surprise me how thin-skinned academics can be. But I do wonder how some of them may have been able to do far better, more useful...
I can understand that; of course, critiques on S4ME are public and necessarily come after publication. A "think tank" might by contrast be...
That one big thing that changes everything isn't all that is important: progress can be made by almost imperceptible incremental steps. Insights...
But that's not all that matters. There are a great many good ideas (and refutations of bad ones) that bubble up from S4ME but never otherwise see...
O/T for this thread but this is something I've been thinking about lately. All too often the conversations are limited mainly to a small group of...
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