Thanks for starting this thread, @Blueskytoo ! A study that collected data on ME patients using these trackers would be interesting.
Thanks for posting, @Andy ! This part, describing Long Covid symptoms, will sound familiar to many ME/CFS patients: Here's a link to what NINDS...
For what it's worth, I just looked more closely at the Feb. 2nd letter sent to Congress (the one that's signed by 11 different ME/CFS groups in...
Here's the #MEAction article about this letter to Congress: https://www.meaction.net/2021/02/04/were-asking-congress-to-not-forget-me/
I've seen "post-acute COVID" (or "post-acute COVID-19") in several other places (and I think I heard it in some video?) but I can't remember...
Yep, that's me. According to my cardiologist, I have both POTS and NCS. I mention this only because I have seen some folks say that you can only...
Slides from the video presentation can be found here:...
I found the following announcement at the bottom of this page -...
This is a late reply but that idiom - "in its infancy" - struck me, too. That "infant" is at least 35-40 years old! (probably even older!)
I got an email update about a date change for one of the Solve M.E. webinars. The webinar scheduled for Wednesday, Dec. 9, has been moved to...
Thanks for re-posting this. I've seen this chart before but I keep forgetting about it. I do wonder whether I have both "short term" and "long...
Thank you @Trish for your letter. I hope your questions get asked during the Solve ME webinar! These definitions are helpful: When I talk about...
Found this article about Karyn Bishof, the woman who created The COVID-19 Long Hauler Advocacy Project and who will be participating in this Dec....
Whitney listed lots of links where folks can pre-order the book (release date is Jan. 5, 2021) but he didn't happen to list where I got my copy....
The title of this book in the USA is The Puzzle Solver. In the UK the title is Waiting for Superman. Post from Whitney's twitter account:...
Registration is now open for this online, NIAID-hosted workshop: Workshop on Post-Acute Sequelae of COVID-19 December 3, 2020—December 4, 2020...
I got an email from my congress representative this morning. She is now a co-sponsor of HR 7057!:party::balloons: (I do wish folks would stop...
Thanks for the heads up @Dolphin I've just retweeted (well, quote tweeted) one of their tweets about it:...
Yep, my pop-ups were disabled. Thanks!
Hi @Andy and thanks for posting. I think I'm missing something? I see the zoom link for registration in the previous post. But it's not included...
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