I saw on the Survivor Corps website that they are asking people to send in questions for Dr. Fauci: Presumably they will select some of these...
Solve ME/CFS tweeted this today:https://twitter.com/PlzSolveCFS/status/1319407326621827078[MEDIA] I wanted a bit more info so I searched their...
This line is so important! I had one friend who had multiple bouts of cancer (breast cancer, ovarian cancer). She finally died from it. During...
I skimmed the NHS announcement and saw that they mention CPET. Is this an opportunity for someone to suggest doing 2-day CPET on COVID patients...
LOL! And this is why auto-generated subtitles are often called CRAP-tions instead of captions. When it's a minor error it's no big deal but some...
30 positive COVID tests: https://twitter.com/LisaDNews/status/1313178416477282305[MEDIA] (@PressSec means Kayleigh McEnany)
I checked the number of co-sponsors for HR 7057 yesterday and saw that the number had been updated to 43! :) It looks like 11 names were added...
Ditto:mad: I'll just be over here, banging my head against the wall, don't mind me....
I thought I'd add a link to Tom's announcement on twitter which provides more context for the interview....
Llewellyn King interviews Tom Kindlon, one of the curators of CO-CURE. Kindlon, who is Irish and lives in Dublin, played an important role in...
For those not in the USA, it's looking like there may have been a "superspreader" event at the White House Rose Garden - announcement of candidate...
On Thursday, Sept. 24, I started making daily calls to my congressional representative to ask her to support HR 7057. Her office is closed, but...
Thanks @Sly Saint ! I had missed this tweet for the teaser trailer. I posted on another thread (in the advocacy sub-forum - Mod note - now...
(bolding mine) Thanks @Colin for transcribing those encouraging lines from the audio (TV?) program.
It looks like the ME Action website has been changed - that link used to work but it does not any more. Here's the new link -...
Someone posted a link on twitter about a planned documentary called Relevium. https://glematiroad.com/relevium-documentary I don't know...
I didn't answer the poll because it's just too hard for me to disentangle all the different types of exertion. I think I'd have to purposely...
I have orthostatic intolerance all the time but it is worse during PEM. It's also worse right after any exertion. If I've been resting with my...
Stories like yours are why I did not do a full sleep test at a lab. I've heard so many stories from ME/cfs patients saying that it was a waste of...
I'm just a patient, sick since 1990, who is sharing some thoughts. I hope this makes some kind of sense. I think that first statement is wrong....
Separate names with a comma.
