I’m not sure how current this is (it’s from 2021) but I also found this...
Wholeheartedly agree. Research could become an easy decision if DecodeME shows us where to look. So maybe some preparation for that, get...
I tend to be more in the having trouble eating or eating enough category when I’m bad. When appetite and ability to eat returns it’s generally a...
In my experience CBT is very good for some things. But is also sometimes used as a term for therapy which isn’t actually CBT. And also used...
This was exactly my experience. A good bunch who were keen to try to find out what was wrong, especially given my history and how my ME started....
I’d agree that’s a really good approach. It nicely opens the door to showing how good quality research and education is a solution too.
Copied post I want good research to find treatments and until then that to ensure day to day care for other issues and any emergencies is...
I want good research to find treatments and until then that to ensure day to day care for other issues and any emergencies is delivered in a way...
I’d like to see something along these lines as more of a focus from patient groups and charities. I don’t disagree Jonathan. I’m not trying to...
I think I’d probably start with how much I got wrong when first ill and how little I knew. About how so many of my assumptions and to be honest...
It’s a really tough one and ultimately I think people’s view on the topic will of course be hugely influenced by their own life experiences and...
The more positive argument here is that in getting a broad church to agree you can focus on raising awareness rather than disagreements. If you...
If it helps I recently emailed my MP and kept it very simple… Now you’re in government what do you plan to do to improve healthcare, social care...
That seems… significant. I hadn’t heard this, thanks for sharing the information.
This is the big question to me which raises serious questions of some work being done currently. We have the NICE definitions. And yet people...
They seem to be implying there could be more than correlation as there are ‘implicated metabolic biomarkers’. Although we don’t know what those...
Link to the zoom has been emailed and posted on their facebook page
I share many of your concerns, but hope you are wrong. And I do think making a strong case that they would be throwing good money after bad could...
Sounds interesting. I wonder how much the difference is the VR or just the quality of the underlying teaching materials?
Well put. I wonder if a push for reform rather the usual ‘give us more money’ message would actually be better received by ministers too.
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