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  1. Jaybee00
    Post

    Sleep meds poll

    I've seen this claim before about trimipramine not affecting sleep stages, but haven't ever really seen good scientific data on this.
    Post by: Jaybee00, Nov 16, 2020 in forum: Drug and supplement treatments
  2. Jaybee00
    Post

    Intravenous Cyclophosphamide in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome. An Open-Label Phase II Study - 2020 - Rekeland, Mella, Fluge et al

    Some correspondence with Bergen... "There have been no further updates since the cyclophosphamide study was published in April this year...
    Post by: Jaybee00, Nov 16, 2020 in forum: ME/CFS research
  3. Jaybee00
    Post

    Kynurenine Trial in ME/CFS - Bergquist

    Also posted the above in the sleep meds thread
    Post by: Jaybee00, Nov 16, 2020 in forum: ME/CFS research news
  4. Jaybee00
    Post

    Sleep meds poll

    Discussion about day-time dosing of melatonin by Robert Phair here...
    Post by: Jaybee00, Nov 16, 2020 in forum: Drug and supplement treatments
  5. Jaybee00
    Post

    Sleep meds poll

    OK, but the trade-off is that the patient misses out on the best sleeping pill. The benzodiazepines for sleep are mostly half-measures. I’ll bet...
    Post by: Jaybee00, Nov 15, 2020 in forum: Drug and supplement treatments
  6. Jaybee00
    Post

    Sleep meds poll

    Ummm you forgot the gold standard. https://www.drugs.com/comments/secobarbital/ A perfect 10/10 rating. Physicians are so scared to prescribe...
    Post by: Jaybee00, Nov 13, 2020 in forum: Drug and supplement treatments
  7. Jaybee00
    Post

    Case Report: Not what it seems to be: Depression versus periodic limb movement disorder, 2020, Gupta et al

    Another example of a dopamine agonist/partial agonist helping with CFS symptoms
    Post by: Jaybee00, Nov 11, 2020 in forum: Psychosomatic research - ME/CFS and Long Covid
  8. Jaybee00
    Post

    Open A Trial of Solriamfetol in the Treatment of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, Joel L Young, 2020

    Why not? I have daytime fatigue and would like to not have it. However, I would prefer to see a trial of pitolisant (Wakix) which works by a...
    Post by: Jaybee00, Nov 10, 2020 in forum: Recruitment into current ME/CFS research studies
  9. Jaybee00
    Post

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    https://www.medpagetoday.com/blogs/vinay-prasad/89564?xid=nl_mpt_DHE_2020-11-10&eun=g1139006d0r&utm_source=Sailthru&utm_medium=email&utm_campaign=D...
    Post by: Jaybee00, Nov 10, 2020 in forum: Long Covid news
  10. Jaybee00
    Post

    Call for submissions for special issue, "Biomarkers in Chronic Fatigue Syndrome (ME/CFS)", Biomolecules journal, deadline 30th June 2021

    This disease should have its own dedicated journal.
    Post by: Jaybee00, Nov 7, 2020 in forum: ME/CFS research news
  11. Jaybee00
    Post

    Restless legs syndrome

    Dopamine agonists, which treat RLS may also treat MECFS https://forums.phoenixrising.me/threads/how-i-solved-my-neuroinflammation.81625/
    Post by: Jaybee00, Nov 6, 2020 in forum: General and other signs and symptoms
  12. Jaybee00
    Post

    Trans-NIH ME/CFS Working Group Telebriefings 2020-2021 (next telebriefing March 30 2021)

    Any ideas for questions for Allison Kanas?
    Post by: Jaybee00, Nov 5, 2020 in forum: ME/CFS research news
  13. Jaybee00
    Thread

    Bifrontal transcranial direct current stimulation modulates fatigue in multiple sclerosis: a randomized sham-controlled study, Chalah, 2020

    https://link.springer.com/article/10.1007/s00702-020-02166-2 Active but not sham tDCS resulted in a significant improvement of fatigue at day 5...
    Thread by: Jaybee00, Nov 4, 2020, 1 replies, in forum: Other health news and research
  14. Jaybee00
    Thread

    The Role of Ketamine Infusion for Patients with MS-Related Fatigue

    https://www.neurologyadvisor.com/topics/multiple-sclerosis/the-role-of-ketamine-infusion-for-patients-with-ms-related-fatigue/ Low dose ketamine...
    Thread by: Jaybee00, Nov 4, 2020, 0 replies, in forum: Other health news and research
  15. Jaybee00
    Post

    Regional microglial activation in the substantia nigra is linked with fatigue in MS, 2020, Singhal et al.

    https://www.healthrising.org/blog/2020/10/15/fatigue-nucleus-multiple-sclerosis-fibromyalgia-chronic-fatigue-syndrome/ Cort’s write up.
    Post by: Jaybee00, Oct 22, 2020 in forum: Other health news and research
  16. Jaybee00
    Thread

    Keith Jarrett Confronts a Future Without the Piano

    https://www.nytimes.com/2020/10/21/arts/music/keith-jarrett-piano.html?action=click&module=Editors Picks&pgtype=Homepage Mentions his CFS
    Thread by: Jaybee00, Oct 21, 2020, 3 replies, in forum: General ME/CFS news
  17. Jaybee00
    Post

    Aripiprazole - Abilify

    @Jessie 107 how long have you been on Abilify? Thanks
    Post by: Jaybee00, Oct 20, 2020 in forum: Drug and supplement treatments
  18. Jaybee00
    Post

    Aripiprazole - Abilify

    80% of patients improve on Abilify according to RD [MEDIA]
    Post by: Jaybee00, Oct 17, 2020 in forum: Drug and supplement treatments
  19. Jaybee00
    Post

    Dr Fauci - Survivor Corps Webinar (no live links)

    Rescheduled A Message from Survivor Corps: We are pleased to inform you that our rescheduled COVID Live Webinar with Dr. Anthony Fauci will be...
    Post by: Jaybee00, Oct 17, 2020 in forum: Long Covid news
  20. Jaybee00
    Post

    Kynurenine pathway is altered in patients with SLE and associated with severe fatigue, 2018, Akesson et al.

    See errata https://lupus.bmj.com/content/6/1/e000254corr1
    Post by: Jaybee00, Oct 16, 2020 in forum: Other health news and research
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