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  1. Jaybee00
    Thread

    2 College Students Dreamed Up an A.L.S. Treatment. The Results Are In.

    https://www.nytimes.com/2020/09/02/health/als-icebucket-treatment.html?surface=home-discovery-vi-prg&fellback=false&req_id=641572005&algo=identity&...
    Thread by: Jaybee00, Sep 5, 2020, 0 replies, in forum: Other health news and research
  2. Jaybee00
    Post

    Plasma proteomic profiling suggests an association between antigen driven clonal B cell expansion and ME/CFS, 2020, Lipkin et al

    Specifically, what types of kinase inhibitors do you think might benefit ME/CFS patients (to interrupt signaling)?
    Post by: Jaybee00, Sep 3, 2020 in forum: ME/CFS research
  3. Jaybee00
    Post

    Senator Ed Markey introduces resolution to encourage immediate government response for ME/CFS

    [MEDIA] [MEDIA]
    Post by: Jaybee00, Sep 2, 2020 in forum: General ME/CFS news
  4. Jaybee00
    Post

    Aripiprazole - Abilify

    https://pubmed.ncbi.nlm.nih.gov/31104106/ In vitro effects of antipsychotics on mitochondrial respiration Maybe this fries your mitos like...
    Post by: Jaybee00, Aug 31, 2020 in forum: Drug and supplement treatments
  5. Jaybee00
    Post

    Plasma proteomic profiling suggests an association between antigen driven clonal B cell expansion and ME/CFS, 2020, Lipkin et al

    I have an advisory role on the Columbia U ME/CFS center. They wanted to know if folks had any questions for their researchers on their study...
    Post by: Jaybee00, Aug 31, 2020 in forum: ME/CFS research
  6. Jaybee00
    Post

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    [MEDIA] partially about “long Covid” aka ME/CFS
    Post by: Jaybee00, Aug 30, 2020 in forum: Long Covid news
  7. Jaybee00
    Thread

    Opinion ‘But I Saw It on Facebook’: Hoaxes Are Making Doctors’ Jobs Harder

    https://www.nytimes.com/2020/08/28/opinion/coronavirus-misinformation-faceboook.html?action=click&module=Opinion&pgtype=Homepage One of the...
    Thread by: Jaybee00, Aug 29, 2020, 7 replies, in forum: Epidemics (including Covid-19, not Long Covid)
  8. Jaybee00
    Post

    A request to those involved in ME research to indicate their position on spinal surgery

    I've reached out via a Columbia U. liaison to Lipkin, Horning and Komaroff. Do I get a Cadbury Flake or the Fruit Pastilles? To reach Ron Davis...
    Post by: Jaybee00, Aug 29, 2020 in forum: ME/CFS research news
  9. Jaybee00
    Post

    Validation of the Severity of ME/CFS by Other Measures than History: Activity Bracelet, CPET, SF-36. van Campen et al, 2020

    Here is part of the abstract from the Rekeland (Fluge) cyclo study...
    Post by: Jaybee00, Aug 26, 2020 in forum: ME/CFS research
  10. Jaybee00
    Post

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    Moderator note: This post and following posts have been moved from this thread: A request to those involved in ME research to indicate their...
    Post by: Jaybee00, Aug 25, 2020 in forum: ME/CFS research news
  11. Jaybee00
    Post

    Cognitive behavioural therapy for adults with dissociative seizures (CODES): a ... multicentre, randomised controlled trial (2020) Goldstein, Chalder

    Whatever happened to this? Did Perez respond to the Tuller letter? @dave30th I sort of liked Perez’ admission that that he didn’t really care...
    Post by: Jaybee00, Aug 22, 2020 in forum: Other psychosomatic news and research
  12. Jaybee00
    Post

    New MS Drug Approved — Ofatumumab is first self-administered, targeted B-cell treatment for relapsing MS

    List of drugs for MS https://www.nationalmssociety.org/Treating-MS/Medications
    Post by: Jaybee00, Aug 21, 2020 in forum: Other health news and research
  13. Jaybee00
    Thread

    New MS Drug Approved — Ofatumumab is first self-administered, targeted B-cell treatment for relapsing MS

    Another drug for MS, still nothing for MECFS. https://www.medpagetoday.com/neurology/multiplesclerosis/88195
    Thread by: Jaybee00, Aug 21, 2020, 1 replies, in forum: Other health news and research
  14. Jaybee00
    Post

    Aripiprazole - Abilify

    Low dose of aripiprazole advanced sleep rhythm and reduced nocturnal sleep time in the patients with delayed sleep phase syndrome: an open-labeled...
    Post by: Jaybee00, Aug 20, 2020 in forum: Drug and supplement treatments
  15. Jaybee00
    Post

    FDA rejects Gilead's would-be blockbuster filgotinib over toxicity concerns

    Looks like it’s still under consideration for the EU. EMA Panel Backs Filgotinib (Jyseleca) for Rheumatoid Arthritis...
    Post by: Jaybee00, Aug 20, 2020 in forum: Other health news and research
  16. Jaybee00
    Post

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Is this sentence as bad as I think it is? Hmmm maybe it is indistinguishable because IT IS MECFS. (from Komaroff article)
    Post by: Jaybee00, Aug 20, 2020 in forum: Long Covid news
  17. Jaybee00
    Post

    FDA rejects Gilead's would-be blockbuster filgotinib over toxicity concerns

    https://www.barrons.com/amp/articles/fda-rejects-potential-gilead-blockbusters-scrambling-drug-stocks-51597846377
    Post by: Jaybee00, Aug 19, 2020 in forum: Other health news and research
  18. Jaybee00
    Thread

    FDA rejects Gilead's would-be blockbuster filgotinib over toxicity concerns

    https://www.fiercebiotech.com/biotech/fda-rejects-gilead-s-would-be-blockbuster-filgotinib-over-toxicity-concerns Testicular toxicity! Wow—This...
    Thread by: Jaybee00, Aug 19, 2020, 5 replies, in forum: Other health news and research
  19. Jaybee00
    Thread

    Upadacitinib (rinvoq)--could it reduce fatigue in ME/CFS?

    https://en.wikipedia.org/wiki/Upadacitinib https://www.rinvoq.com/ Janus kinase inhibitor that is selective for the JAK1 subtype of this...
    Thread by: Jaybee00, Aug 17, 2020, 33 replies, in forum: Drug and supplement treatments
  20. Jaybee00
    Post

    JAMA -"Advances in understanding the Pathophysiology of Chronic Fatigue Syndrome" by Anthony Komaroff

    Can someone tell me how to get the Komaroff article--Can't get it from JAMA or SCIHUB--thanks Got it, thanks.
    Post by: Jaybee00, Aug 17, 2020 in forum: General ME/CFS news
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