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  1. Jaybee00
    Post

    Mapping of pathological change in chronic fatigue syndrome using the ratio of T1- and T2-weighted MRI scans. Thapaliya et al. 2020

    Does this mean we need a med that crosses the blood brain barrier to treat our pathological brains? Or will fixing the non-brain issues...
    Post by: Jaybee00, Aug 4, 2020 in forum: ME/CFS research
  2. Jaybee00
    Post

    Short summary of meds i tried by now

    @Badpack What symptoms did phenytoin help with? Did you stop taking it? Thanks
    Post by: Jaybee00, Aug 3, 2020 in forum: Other treatments
  3. Jaybee00
    Post

    Genetic Risk Factors of ME/CFS: A Critical Review. Joshua J Dibble, Simon J McGrath, Chris P Ponting. 2020

    Congrats Simon!
    Post by: Jaybee00, Aug 3, 2020 in forum: ME/CFS research
  4. Jaybee00
    Post

    Biomedical research findings in ME/CFS that were replicated by multiple groups - discussion thread

    Low serum folate—maybe/maybe not. I’m really surprised that there was no follow up on the 1993 study until 2019. Did I miss some studies?...
    Post by: Jaybee00, Aug 3, 2020 in forum: ME/CFS research
  5. Jaybee00
    Post

    Digital Behavior Change Interventions for Younger Children With Chronic Health Conditions: Systematic Review, 2020, Crawley, Loades et al

    Yes, absolutely. There are 10 authors on this "super important" study. If they each spent 10 weeks total on this at an average of $2000 weekly...
    Post by: Jaybee00, Aug 2, 2020 in forum: Other psychosomatic news and research
  6. Jaybee00
    Post

    Biomedical research findings in ME/CFS that were replicated by multiple groups - discussion thread

    Very low ESR https://ashpublications.org/blood/article/132/Supplement 1/4874/262252/Erythrocyte-Deformability-As-a-Potential-Biomarker...
    Post by: Jaybee00, Jul 31, 2020 in forum: ME/CFS research
  7. Jaybee00
    Post

    Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Efficacy of Repeat Immunoadsorption. Tolle, Scheibenbogen et al. 2020

    You mean they would be very vulnerable to contracting/dying from an infection with that much IgG depletion?
    Post by: Jaybee00, Jul 30, 2020 in forum: ME/CFS research
  8. Jaybee00
    Post

    Evidence for a genetic component in ME/CFS - discussion thread

    Ponting threads https://www.s4me.info/threads/significant-association-of-dna-variants-with-self-reported-me-cfs-chris-ponting-blog.5520/...
    Post by: Jaybee00, Jul 30, 2020 in forum: ME/CFS research
  9. Jaybee00
    Post

    Robuvit - oak wood extract supplement

    No idea, actually. I just wanted to see it had a similar structure pycnogenol, but it is different
    Post by: Jaybee00, Jul 30, 2020 in forum: Other treatments
  10. Jaybee00
    Post

    Robuvit - oak wood extract supplement

    Looks like a bigger molecule than pycnogenol https://www.sciencedirect.com/science/article/abs/pii/S0367326X10001413...
    Post by: Jaybee00, Jul 30, 2020 in forum: Other treatments
  11. Jaybee00
    Post

    Richard Horton on Covid-19

    https://www.washingtonpost.com/world/europe/lancet-richard-horton-trump-vaccines/2020/07/29/1209b610-d048-11ea-826b-cc394d824e35_story.html?utm_med...
    Post by: Jaybee00, Jul 30, 2020 in forum: Epidemics (including Covid-19, not Long Covid)
  12. Jaybee00
    Post

    Michael VanElzakker

    Seems like feeling good or feeling better would be a reasonable goal for any treatment.
    Post by: Jaybee00, Jul 28, 2020 in forum: ME/CFS research news
  13. Jaybee00
    Post

    Chronic fatigue syndrome may hold keys to understanding post-Covid syndrome: David Tuller and Steven Lubet July 21, 2020

    Do you have evidence to support this statement? By “they” do you mean all the people involved in the development of these several diagnostic...
    Post by: Jaybee00, Jul 24, 2020 in forum: Long Covid news
  14. Jaybee00
    Post

    Coronavirus - worldwide spread and control

    [MEDIA] Surprise!
    Post by: Jaybee00, Jul 23, 2020 in forum: Epidemics (including Covid-19, not Long Covid)
  15. Jaybee00
    Post

    Chronic fatigue syndrome may hold keys to understanding post-Covid syndrome: David Tuller and Steven Lubet July 21, 2020

    [ATTACH] All except ICC require 6 months
    Post by: Jaybee00, Jul 23, 2020 in forum: Long Covid news
  16. Jaybee00
    Post

    Chronic fatigue syndrome may hold keys to understanding post-Covid syndrome: David Tuller and Steven Lubet July 21, 2020

    This thread is starting to give me the heebie-jeebies. 1) There is no definitive biomarker for ME/CFS 2) In light of no definitive biomarker, the...
    Post by: Jaybee00, Jul 23, 2020 in forum: Long Covid news
  17. Jaybee00
    Post

    Plasma proteomic profiling suggests an association between antigen driven clonal B cell expansion and ME/CFS, 2020, Lipkin et al

    If the energy Gods allow, it would be great to see a write up on this from @Simon M Also would really welcome commentary from the B-cell slayer...
    Post by: Jaybee00, Jul 22, 2020 in forum: ME/CFS research
  18. Jaybee00
    Post

    Chronic fatigue syndrome may hold keys to understanding post-Covid syndrome: David Tuller and Steven Lubet July 21, 2020

    Yes, this was my point. If you meet the various diagnostic criteria, at 5 months 30 days you still have "post-covid". By definition, if you meet...
    Post by: Jaybee00, Jul 22, 2020 in forum: Long Covid news
  19. Jaybee00
    Post

    Chronic fatigue syndrome may hold keys to understanding post-Covid syndrome: David Tuller and Steven Lubet July 21, 2020

    Although I applaud the general goal of this article, I believe it has some problems/inaccuracies. 1) This authors beat around the bush about the...
    Post by: Jaybee00, Jul 22, 2020 in forum: Long Covid news
  20. Jaybee00
    Post

    Elena Delle Donne—An open letter about my health

    Well if she has had “this” for 10 years and still won 2 MVPs and been a 6X All-Star, that is pretty remarkable....
    Post by: Jaybee00, Jul 16, 2020 in forum: Other health news and research
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