That’s nice. Or you can just ask visible for their data, they have monthly FUNCAP 27 as well as daily exertion, heart rate etc.
I think the “feel like…” is corporate speak. It is useful in a 1-1 or personal situation to acknowledge someone’s sense of a situation and/or...
I was recently in severe pain (same as most months) I looked on the internet. I’d rate my pain at 8 on the 1-10 pain scale. If I didn’t know it...
I got eczema and hay fever for the first times in the 2 years before I became unwell (which is now the “start” of my ME) recently become allergic...
This just reminded. I read “something” on the internet about sleep apnoea. It said one of the signs can be “controlling” behaviour. It was clearly...
That would hurt my arms.
What were you doing with your arms when you were going up/down the stairs? I find my arms hurt and tire easier than my legs. If I did stairs I...
I am definitely disabled and always identify as disabled. So maybe it’s just me and three others in this data who think so? I do think the...
I think PIP and benefits is a really good demonstration of why people don’t slow down. Are you well enough to work? Yes, but I shouldn’t as it’s...
Oh my days. We’re researching the opinions of sick people now?
I agree with Trish. I think the BPS types have managed to weaponise the initial “oh yes I do feel a bit better” as evidence that we are needy,...
My point being this is a very narrow field, as it’s looking at women who do have ME/CFS or LC, don’t have migraines, can use a combined pill and...
I don’t like that wording “terrific > bedridden” an emotion vs a physical disability, nice. Thanks.
https://me-pedia.org/wiki/Migraine#:~:text=Migraines%20commonly%20occur%20in%20people,a%20cohort%20of%20healthy%20controls. A 2011 study found...
Like many women who have migraines, I couldn’t use the combined pill. I’ve no idea what the crossover is of female+migraine+ME/CFS but I’m sure...
The Guardian is a tabloid disguised as a broadsheet. It almost went under before Kath vainer brought it back from the brink with affiliate links...
I’d posit they would lean toward higher antibodies, given it’s not the cleanest!
apologies, I was referring to GPs only
It’s not rocket science - do less than you’re able to and don’t exercise. That’s pretty memorable. They just don’t like the idea.
Yes. But only because they have a “distressed personality” and everything causes them excessive distress.
Separate names with a comma.
