It reminds me of the doctors under the Maoist rule. They couldn’t diagnose depression in their patient as that was a dissident political act, to...
Simple. If you’re in widespread pain of unknown source and you think about it, have feelings about it or it affects your behaviours, it’s...
The shrinking “blame gap” is one reason we will never see a proper pacing trial. Although, I guess if you don’t feel better, you’re doing it...
I’d like to see some people design a pacing/energy management trial, then try to evaluate it, just for laughs. It’s such a poorly-defined “cookie...
I was reassured by Sonia’s letter. I got the impression that whatever slack gatekeeping had been happening in the past was not going to be allowed...
We need a celeb (non-bps) champion who then wants to go out and bat for us.
Good point. When first diagnosed, I was working in Central London and a friend of a friend was a consultant. They mentioned I had been diagnosed....
I think if I were reading about how to pace, I’d have needed someone to tell me it’s a coping mechanism not a cure. It’s nice to “even out” energy...
Oh, so does this mean you are, in fact, entitled to see the 2014 minutes, after all!
Good job there’s a cat in hells chance of anyone doing anything, then.
They are good at the high level policy stuff, aren’t they? Some really good “asks” identified.
I knew he’d been reported as being fair convinced of death in 8 months. I wonder why.
But she was calling in ME. She said it’s undermining and a waste of time to discuss a name.
Did you find that reference by Dr Roy in the end? I know I recalled it but you wanted to see where it was.
Is that good enough reason to think you should “tell” people not to discuss the name? The whole point of my post being the unreasonableness of...
One theme I find interesting (and a turn-off) is people who want to police what others say/discuss etc. You may find it unhelpful, useless and...
It’s really hard for me to understand being “misdiagnosed” with agoraphobia if it was really ME/CFS. I was always an extrovert who loved being...
It’s annoying that it’s seen as an “ME patient community” behaviour. There are countless examples of people doing a “pile-on” or bombarding...
Nobody has been on to police the comments since this morning?
It would not be appropriate. However, issuing guidance in accordance with Nice 2021 could be. But Neil would fall foul of that.
Separate names with a comma.
