@Jonathan Edwards How did you measure improved function in RA trials? I mean, as you are aware, you could measure, say, B-cells or whatever, and...
@sb4 : Of course, there is a subset of us ME/CFS patients who do have a lot of problems with fats (I know @Sid on the other forum has talked about...
Yeah the moment I saw this, I tweeted thus: [MEDIA]
I've always thought the PACE study was actually a good study in ruling out deconditioning as the cause of ME/CFS. The 6-min walk test is a...
Before ME made it impossible, I was once an aspiring academic specialising in the Middle East. While I think someone Muslim would better speak to...
Thanks for the responses! Yes, epinephrine would kill me. Maybe literally. I respond badly to any sort of stimulant, caffeine, d-ribose, ALCAR....
See also our Members Only thread on Dentistry -Dental treatment I've never had a cavity but at my once o'half decade dental check-up the dentist...
I'm a big believer in the cliche that gets beaten into every writing workshop student: show, don't tell. I'd rather someone show me that he or she...
I've had life long gut-motility issues that finally wandered into the gastroparesis territory last year after increased Baclofen use (was also...
Just wanted to add that I've wondered this too. When I use crash as a verb, e.g. "I'm crashing", it's usually an acute, almost emergency-like...
The vertigo started about a year and a half after onset (or 18 years after, depending on how one dates my onset). Initially it was brief bursts of...
I saw the orthopedist(s) routinely growing up but never once went to a rheumatologist until I was almost 30 and referred to one to be evaluated...
Or, let me put this another way. Your symptoms -- and all of those diagnosed with hEDS -- are almost certainly based on a biological problem. It's...
Mine was the opposite; first multiple fractures, soft tissue injuries, dislocations, then ME/CFS-like symptoms. To me, if there is a link...
I'll say it again: Your symptoms are very real. It's the explanation your doctor is giving you to explain why you're having those symptoms that...
As someone who has been diagnosed by a medical geneticist with hEDS/EDS3 (as it was known when I was diagnosed), and who has spent much of my life...
Well, I'm really glad for y'all who didn't pin your hopes on Rituxan... BUT Four years ago when they started this study, I was getting worse. I...
:rofl::rofl: I logged in just to say you gave me a good chuckle, @TiredSam. Seriously, after spending most of this week weeping whilst reading...
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